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Shoulder #281608
10/03/18 12:24 PM
10/03/18 12:24 PM
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sdot Offline OP
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My shoulder has been in pain for a few months now, seems that nothing is helping. Was on prednisone for it and no help, nothing from the MTX so far. Is there anything specific with AS and shoulder pain, or shoulder pain in general? This is one painful adventure for sure.

Re: Shoulder [Re: sdot] #281617
10/03/18 04:26 PM
10/03/18 04:26 PM
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Have you had x-rays to see if there are any mechanical issues?

My husband has severe OA, and his shoulder is one of his worst areas. So I understand how bad shoulder pain can be and how every little move can affect it.


Ginny - 57 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Shoulder [Re: sdot] #281628
10/03/18 08:01 PM
10/03/18 08:01 PM
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Los Angeles, CA
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Hi Sdot, sorry to hear about your shoulders. according to a text on my shelf, shoulder and hips are afected in at least 1/3 of people living with AS. I'm one of them. I can relate to shoulder pain -especially trying to sleep through the night.

Good thing to talk to doc about. especially since prednisone didn't help. agree with southern moss, best to rule out other issues.

Then, possibly a good physical therapist referral with AS experience? What I do, which seems counter intuitive with pain, is to cardio exercise on spin bike (so, not using shoulder directly), breathing exercises, and start stretching the muscle and joints directly (lightly at first).

Hope that helps.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Shoulder [Re: sdot] #281629
10/03/18 08:58 PM
10/03/18 08:58 PM
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seymour Offline
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My shoulders are uncomfortable and they crack and pop every time I roll them. It's painless when I move them but they tend to hurt when I don't move.

Re: Shoulder [Re: sdot] #281702
10/09/18 08:12 PM
10/09/18 08:12 PM
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sdot Offline OP
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I am going to hit the doctor and see if I can get an xray and some help. I was really wishing it would go away on it's own. The pred I took was for the shoulder, but it did nothing, so who knows, maybe it could be something else.

Re: Shoulder [Re: sdot] #281803
10/16/18 06:53 PM
10/16/18 06:53 PM
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sdot Offline OP
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When people talk about Canadian 'Free' Health care, here are some things to remember.

My doctor referred me to get an ultrasound of my shoulder. The wait time is one month.

Re: Shoulder [Re: sdot] #281805
10/16/18 08:22 PM
10/16/18 08:22 PM
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Winston Offline
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In the US, the wait time may also be one month, and then you'll get a bill for $1700 or some other ridiculous figure.

Re: Shoulder [Re: sdot] #281807
10/16/18 10:08 PM
10/16/18 10:08 PM
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seymour Offline
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Originally Posted by sdot
When people talk about Canadian 'Free' Health care, here are some things to remember.

My doctor referred me to get an ultrasound of my shoulder. The wait time is one month.


I'm in Quebec and waited 2 days for my last ultrasound.

Re: Shoulder [Re: Winston] #281808
10/16/18 10:08 PM
10/16/18 10:08 PM
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Iowa City, IA USA
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DadCue Offline
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Originally Posted by Winston
In the US, the wait time may also be one month, and then you'll get a bill for $1700 or some other ridiculous figure.


That would be for the uninsured...in many cases it never gets paid and the provider writes it off and passes the cost onto the insured. The insurance company usually doesn't pay the full amount either but a good part of it. The remainder it billed to the individual which, with luck, is 10-20% of approved amount. But if you are lucky and have reached your out-of-pocket maximum for the year then it is 0%. Of course there are other little things like deductibles, co-pays, preferred providers and such. Then when you start to understand everything, you get to switch to government provided insurance ... aka medicare. I haven't figured out that system yet.

I think that the person who dreamed up the system was having a nightmare.



Re: Shoulder [Re: sdot] #281810
10/16/18 11:01 PM
10/16/18 11:01 PM
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It's not a problem just for the uninsured. Even insured patients pay out of pocket until they meet their deductibles, and $10,000+ deductibles are common these days. Also, $10,000-$20,000 annual insurance premiums are common. The lucky patients with insurance pay thousands of dollars in insurance premiums for insurance coverage that doesn't kick in until they've spent thousands of dollars on care. So I guess I find the "grass is always greener" arguments tedious. All our systems have their problems. In the US, it's (1) cost, (2) cost, (3) cost, and (4) complexity. (Before the ACA, it was (1) access, (2) cost, (3) cost, (4) cost, and (5) complexity). In other countries, it seems to be access or timely access. They're all roadblocks to care.


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