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Re: Shoulder [Re: sdot] #281903
10/29/18 08:02 AM
10/29/18 08:02 AM
Joined: Jan 2016
Posts: 16
Joshua Tree, CA
jtmak Offline
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jtmak  Offline
Registered Visitor

Joined: Jan 2016
Posts: 16
Joshua Tree, CA
Agree to the many frustrations with insurance. I'm 62 yrs old now, my AS sx's started at 30 yrs old (1986) but not dx /tx until 2015. In 2015 they offered me Humira which increased my pain so i discontined. Uveitis, back and neck psin were common and primary issues but now i wonder if increased age is reason for new symptoms? . Shoulder and arm pain have been new since spring. Xray is negative so now waiting for md appt. Worse pain since early days w/ SI pain.


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
Re: Shoulder [Re: sdot] #281915
10/30/18 11:58 AM
10/30/18 11:58 AM
Joined: May 2010
Posts: 1,447
Whidbey Island WA
W
WhiteCell Offline
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WhiteCell  Offline
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Joined: May 2010
Posts: 1,447
Whidbey Island WA
Well we know the drill. Warmth and cold see which works best,,,,rubs include Aspercreme with Lidocaine, Bio freeze (which works best for me) and by prescription Voltaren gel....yes it may be age related but I suspect it needs oxygen to tissues since there is no X-ray bone issue. I would check with a PT or OT as well if your MD will prescribe it. Once it starts moving I suspect it will improve.


Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: Shoulder [Re: sdot] #281917
10/30/18 02:37 PM
10/30/18 02:37 PM
Joined: Jan 2016
Posts: 16
Joshua Tree, CA
jtmak Offline
Registered Visitor
jtmak  Offline
Registered Visitor

Joined: Jan 2016
Posts: 16
Joshua Tree, CA
Thanks. The hot //cold helps to start moving in the morning. While new problems are in shoulder area the pain varies; upper arm which i think are the enthesis points below shoulder on arm and above elbow. At times bicep/tricep muscles are cramping? Or almost feel like muscle pain is dry #10 on 1-10 pain scale level. Is this peripheral AS? Having never had arm/shoulder involvement, its vert scarey. I barely sleep 2 hours without waking from pain.NASAIDS only leave me with gut issue -( am taking with food). I have new HMO rhuemy appt in Nov which am not confident of since am in a rural area. Hoping here to understand Perpheral AS since my pain has never included arm /shoulder involvement and limitations :-(. Thank you for response.


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
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