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Radio Frequency Ablation #281970
11/06/18 06:16 PM
11/06/18 06:16 PM
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TexasGirl Offline OP
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Have any of you tried this for your pain? I’m trying them in lumbar, thoracic, and possibly SI joints for pain in December. The doctor said they burn the nerves wherever they think they are based on general landmarks. That scares me a bit because what if my nerves are in a different spot than most people’s? I have some kyphosis, but pretty good on not having fusion since I’ve been on biological from almost day one. Have a bone spur and a couple neck discs stacked funny. I’m a female and have been on Cosentyx for quite a while.

I would love to hear your thoughts and experiences. Thank you!

Re: Radio Frequency Ablation [Re: TexasGirl] #281983
11/07/18 05:12 PM
11/07/18 05:12 PM
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WhiteCell Offline
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I think that accurate mapping of your nerve pathways would be key for the proposed treatment to be helpful.


Starting at 18 yrs old > Reiter's Syndrome. Diagnosed 2001 Ank Spon.
Started Remicade 2002 - 5mg/kg every 7 weeks.

Right Eye Glaucoma- Trabeculectomy/lens replacement 2006.
Right eye DSEK Cornea Transplant 2009.
Right eye Ahmed Shunt 2016.
Right eye DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. 2004. Cured by RF ablation 2008.

ICU RN - Seattle, WA

~Grasp The Challenge and Succeed~
Re: Radio Frequency Ablation [Re: TexasGirl] #282004
11/08/18 05:58 AM
11/08/18 05:58 AM
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Brody96 Offline
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Will you have an appointment where they numb your nerves first to tell if you’re a candidate for ablation? I just had mine numbed last week and I got zero relief. I’m assuming this means they didn’t hit the nerves that cause my pain. My grandfather just had his first actual ablation and he has been miserable since, his pain has actually increased dramatically. I’m hoping that it’s just related to the steroids they injected into the joints at the same time. I’m very, very nervous to have the actual ablation dome now though. Let me know how yours goes and good luck!


22yr old female. Ankylosing Spondylitis and Lupus.
7 hip surgeries and counting

Dog mom of 3 rescues laugh

Re: Radio Frequency Ablation [Re: Brody96] #282007
11/08/18 03:14 PM
11/08/18 03:14 PM
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SouthernMoss Online
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Originally Posted by Brody96
My grandfather just had his first actual ablation and he has been miserable since, his pain has actually increased dramatically.


I have a co-worker who just had an ablation done Tuesday (for different spinal issues, not AS), and she told me that her doctor said her pain would be worse for the first few days.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Radio Frequency Ablation [Re: TexasGirl] #282024
11/11/18 12:00 PM
11/11/18 12:00 PM
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Is this a common treatment with decent success rate for those with AS?

I must say I've never heard of it but Id be interested to know how well it deals with the pain caused by spondylosis. Would be interested to know if any other members have had this and what their experiences are.

Re: Radio Frequency Ablation [Re: TexasGirl] #282128
11/25/18 08:51 PM
11/25/18 08:51 PM
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TexasGirl Offline OP
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Yes, I’ve had several of those injections and they have helped greatly. I’m still really nervous for the ablation though. I’ve heard the recovery is hard. But my pain therapist and pain doctor have seen great results with them so it’s worth it to try. I wonder why we don’t just keep doing the injections though.

Thanks for your help! I’ll let you know how it goes.


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