Spondylitis Association of America
Posted By: Spenser23 Spondyville's Octoberblest! - 10/02/13 05:48 PM





What is the context in which you hold having this chronic disease?

How do you deal with the pain and suffering that can come with A.S.?

This month, instead of focusing on the pain and suffering that we endure, I would like to propose that we concentrate on all the many ways in which we are blessed.

While we may continue to live with pain, we do not have to suffer. Pain is experiential, suffering is context. We suffer because we let our lives become about being in pain, rather than focusing on what drives our hearts forward.

When we get our attention off ourselves, when we find a purpose on which to focus, we cease to suffer, even if we remain in pain. That's my theory anyway.

Spondyville's Octoberblest hopes to help our fellow Spondys to begin to think about, and perhaps change the way they hold having this disease.

I believe that if you can get past suffering, you'll find a new, more optimistic course for your life. Remember, having A.S. is not the end of your life, it is the beginning of a new and challenging chapter, with just as many triumphs, rewards and adventures to embrace as you would have found on the path you were on before having this disease.

So, let me hear from you; Name one way in which you are blessed. Then see if you can name one new and different way you are blessed for every day of the month of October.

Can you do it? (It's not as easy as it sounds.) wink

For more about Spondyville's Octoberblest:

http://www.spondyville.com/Page105Octoberblest2.html



Spenser23
Posted By: Lenka Re: Spondyville's Octoberblest! - 10/02/13 08:52 PM
My cat Kissa fall in love with me-1st time in 10 years since I bough her. I try to forget that she has no choice since all my boys left house and now just me and her. I wish she lern do how to brush her teeth before she kiss me!
Posted By: SouthernMoss Re: Spondyville's Octoberblest! - 10/03/13 04:25 PM
So many blessings...

My husband is retired and although he has severe osteo, he does most of the cooking, loads the dishwasher and does all the laundry

My 2 children have both graduated from college in the past 12 months and both have good jobs. So proud of both of them!

My employers are great and have been very understanding and supportive since my diagnosis.

I discovered water aerobics in May, and it's been a Godsend for keeping me moving.

I have a roof over my head and food in my refrigerator.

I have a wonderful church family. We all support and watch out for each other.

I have an awesome extended family - mother, sister, brothers, in-laws, nephews, great-niece...


There, that gets me through the first week!
Posted By: Spenser23 Re: Spondyville's Octoberblest! - 10/03/13 04:57 PM
I am blessed to have a supportive family and great friends that are there to assist me when I need help. For example, I have two friends, both neighbors who live in my building ... Each weekday, before I head out to work, one of them comes by and fastens the velcro straps on my shoes. (I can put my shoes on, I just can't get the straps on without assistance.)

I am also blessed to have such a resilient sense of humor. It has gotten me through a lot of hard times.


Spenser23
Posted By: acroce203 Re: Spondyville's Octoberblest! - 10/03/13 06:37 PM
Hi Spencer,

What a wonderful thought this is. It is so important not to allow any type of disease define you as a person. There will be horrible days, not so horrible days and really good days. Thank God for this board, and especially your sense of humor.

Posted By: Spenser23 Re: Spondyville's Octoberblest! - 10/04/13 03:57 AM

By the way ... In this situation, Spondyville is using Blest or Blessed irrespective of religious connotations.

We are, in fact, not talking at all about religion. (Spirituality, perhaps, but not religion or even necessarily a belief in God.) Think of us using the word as in the way people say, "my parents gave me their blessing."

If Blessing makes you a bit fearful of religious connotations, you can just as easily replace 'blessed' with 'fortunate' ...

Needless to say, OctoberFortunate doesn't have as good a ring to it as Octoberblest, but never mind that. smile


Day 4: I am blessed to live in a city that has access-a-ride service for people like me with disabilities which makes it possible for me to continue to work full-time.



Spenser23
Posted By: mrye4709 Re: Spondyville's Octoberblest! - 10/04/13 04:38 AM
I'm blessed to have a wonderful husband who would do anything to make me feel better. I'm blessed that we have made it almost 30 years and are.stronger than ever.
Posted By: Amers Re: Spondyville's Octoberblest! - 10/04/13 02:50 PM
I'm blessed to have a patient and supportive husband. He's practically my only support system, but he's a good one.

I'm also blessed to have close access to an amazing medical center and a rheumy who gives me aggressive treatments now instead of making me wait until it's too late.
Posted By: luckypony Re: Spondyville's Octoberblest! - 10/06/13 12:41 AM
I am really blessed to have my best friend. We were friends long before autoimmune diseases took over our lives. She started her quest for a diagnosis about a year after we became friends. Turns out she has Lyme and Fibro. Then a year ago I started my diagnosis quest and discovered I have AS. We've been friends now for almost 5 years. Longest time I've been able to hold on to a best girlfriend! I've always been the ultimate tomboy.

It is so so so awesome that we have each other. Nobody understands like a fellow spoonie!

Not to get too religious, but I truly believe that it was not a coincidence that we became friends.
Posted By: mrye4709 Re: Spondyville's Octoberblest! - 10/06/13 05:27 AM
I'm blessed with two terrific grandaughters,bright,beatiful and very well mannered. We were able to take a roadtrip to MO to see some family sing bluegrass and country and it was a very relaxing enjoyable trip.
Posted By: Soccerdocmom Re: Spondyville's Octoberblest! - 10/09/13 01:52 AM
Ok, so I'm 8 days late to this party, but I'll pop in with a few when I can :-)

I am so blessed to have a family who love me.

I am so blessed to have a place to live.

I am blessed (in my opinion) with a wicked sense of humor to deal with this screwy disease.

Oh, and I am very blessed (and grateful) that coffee is available over the counter :-)
Posted By: Mama_Wicks Re: Spondyville's Octoberblest! - 10/09/13 03:06 PM
I am also late, but grateful every day for so many things. Besides the usual friends, family, faith....

I am grateful for the sunshine I feel on my face, the wind at my back gently prodding my on, and the crunch of fall leaves under my feet.
I am grateful to have been able to leave my position at work to focus on my studies, family, and readings.
I am grateful that some days my biggest decision is how I can volunteer my newly found free time.
I am grateful that others see me volunteering even though they know my pain and suffering, not for praise and recognition, but to see that you can always do more than you think you can, sometimes with much less than you had, to help others that are less lucky than you are.

God bless all of you

Posted By: SouthernMoss Re: Spondyville's Octoberblest! - 10/09/13 03:33 PM
I am blessed to have two kitties (both 15 years old!) that are a great comfort to me. They can sense when I am upset or hurting or sick and will sit with/on/beside me.
Posted By: ottawah Re: Spondyville's Octoberblest! - 10/10/13 01:28 AM
I'm very blessed.

I live in Canada and have health care.

I have disability coverage and can still work part time.

I have a drug plan.

I have an amazing family - a husband I'm crazy over, wonderful kids, lovely parents.

I have enough food, clothing, and a roof over my head.

I am learning to live with my AS, not just manage it.

I seem to be responding to Enbrel. Yay!

The apple tree gave us a good harvest this year.

I'm very lucky, even in the face of all these really sucky challenges smile
Posted By: onlywhenilaugh Re: Spondyville's Octoberblest! - 10/10/13 01:50 AM
With a few adaptations I have been able to live a fairly normal life.

I have a wonderful husband. We have just celebrated 26yrs.

I have two wonderful children.

I have four of the sweetest grandchildren you could imagine.

My extended family on both sides is loving and fun with no arguments or drama that seems to plague many families.

We have military health insurance, which is very affordable compared to what others are paying.

So far I don't think that I have any fusing.

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