Spondylitis Association of America
Posted By: Mary Beth Booster Dose? - 08/13/21 09:35 PM
Hello! I thought I’d open a thread for people to share whether or not they are planning on getting an extra dose of vaccine, based on new CDC guidelines.

I take Humira and no other immune modifiers. I plan on checking with my rheumatologist but haven’t done so yet.
Posted By: Mary Beth Re: Booster Dose? - 08/13/21 10:55 PM
Updating because I finally found a list of conditions, after much searching.

According to a slideshow released by the CDC following the meeting, people with “moderate to severe immuno compromise” apply. The conditions include people who have been treated for certain types of cancer, those who have received organ or stem cell transplants, people with severe primary immunodeficiency, and people with advanced or untreated HIV.

It also applies to people who are taking certain medications, including “high-dose corticosteroids, alkylating agents, antimetabolites, tumor-necrosis (TNF) blockers, and other biologic agents that are immunosuppressive or immunomodulatory,” according to the CDC.

From


https://www.msn.com/en-us/news/us/h...-the-cdc-just-released-a-list/ar-AANhrS6

Another source as the first article changed.

https://www.wfmj.com/story/44521192/cdc-holds-vote-regarding-booster-shots
Posted By: Mary Beth Re: Booster Dose? - 08/15/21 02:34 AM
And here is the CDC slide deck.

https://www.cdc.gov/vaccines/acip/meetings/downloads/slides-2021-08-13/02-COVID-Dooling-508.pdf
Posted By: Winston Re: Booster Dose? - 08/15/21 08:01 PM
I got my booster shot yesterday. I'm on Enbrel and take no other immune suppressing drugs. I got the shot at a grocery store pharmacy. They didn't require any sort of formal proof of my immune-suppressed status. Beware of the side effects. They were much worse for me after the third shot than after the second. I was as sick last night as I've ever been in my life. Fever, chills, and all-over body aches that kept me up most of the night. If you aren't able to easily take off work, I recommend getting the shot on a Friday so you'll have the weekend to recover.
Posted By: Mary Beth Re: Booster Dose? - 08/16/21 02:54 AM
Originally Posted by Winston
I got my booster shot yesterday. I'm on Enbrel and take no other immune suppressing drugs. I got the shot at a grocery store pharmacy. They didn't require any sort of formal proof of my immune-suppressed status. Beware of the side effects. They were much worse for me after the third shot than after the second. I was as sick last night as I've ever been in my life. Fever, chills, and all-over body aches that kept me up most of the night. If you aren't able to easily take off work, I recommend getting the shot on a Friday so you'll have the weekend to recover.

Winston I’m concerned about just that, even worse side effects. Especially for people like us who are only moderately immunocompromised.

How long did it last?
Posted By: Winston Re: Booster Dose? - 08/16/21 12:49 PM
The worst side effects lasted about 12 hours. I got the shot around noon on Saturday and began feeling tired in the late afternoon. The fever, chills and body aches set in in the evening and lasted most of the night. I had a terrible night and only managed to doze off sometime early Sunday morning. When I got up a few hours later, the worst symptoms were over, and I just had some fatigue, headache, and a very sore arm. Tylenol helped with the headache and arm. My symptoms gradually improved throughout the day on Sunday, and I feel back to normal this morning.
Posted By: RAHMBA Re: Booster Dose? - 08/16/21 04:44 PM
TY Mary Beth for the post.

Thank you Winston for sharing your experience.

I was planning on getting the booster when it is available to me. I wouldn't want to take a shot away from someone else but if there are plenty of vaccines, I'd like it. I'm not taking a biologic, but have had a host of immune mediated diseases AS, PsA, uveitis, uc. plus restrictive lung. Perhaps I should get it while they are still loosie goosie on who is eligible?
Posted By: Winston Re: Booster Dose? - 08/16/21 05:35 PM
RAHMBA, I don't think you have to worry about taking a shot away from someone else. My friends in healthcare around here tell me that, despite the delta variant, they are still routinely throwing vaccine away. They do their best to cluster their shots so they aren't forced to do that, but there's only so much they can do. When I called about getting a shot on Saturday morning, the pharmacist asked me if I minded being "on call" for the shot, as opposed to coming in right away. She texted me later when she opened a vial for a walk-up customer and told me to come in. That way she could be sure to use at least two doses in the multi-dose vial. There are, of couse, inequities higher up the distribution chain where some entire countries are being denied vaccines while richer countries administer booster shots. But nothing you or I, as individuals, do is going to affect that situation.
Posted By: ljg Re: Booster Dose? - 08/18/21 08:59 PM
I got my booster Pfizer shot on Aug 16, after asking my rheumatologist what he recommended. I'm on Cosentyx for my AS. No terrible side effects from the shot but my arm did hurt quite a bit starting around 6 hours afterwards. Got a neckache and headache and felt tired for a lot of the next day. This can happen even when I haven't just been vaccinated. I'd say this reaction was about the same as when I had the 1st Pfizer shot (in February). I didn't have much of a reaction to the 2nd one (in March).
Posted By: Golanist Re: Booster Dose? - 08/18/21 09:42 PM
I got my booster a week and a half ago.
I'm also on Cosentyx ( which I love).
The side effects were similar to what I had after the 2nd shot.
A bit of fever for a day and wiped out for a couple of days.
In my area we're having quite an outbreak and I'm seeing lots of vaccinated people getting sick. Mostly those who were vaccinated 5-6 months ago or more, so. .....
I'm glad I could get the booster.
Posted By: Mary Beth Re: Booster Dose? - 08/23/21 09:13 PM
I got my third dose of Moderna yesterday around noon. Side effects for me were very similar to the second dose.

Arm pain (worse than second dose, about the same as first dose)
Really bad headache (similar to second dose)
Fatigue (a bit less than second dose)
Muscle heaviness (less than second dose)
Low grade fever (about the same or a bit lower than second dose).

Were it not for the headache, it wouldn’t be bad. It feels like the type of headache only anti-inflammatories would knock back but I don’t want to take anything that could theoretically tamp down my immune response. It’s as bad as a migraine but more in the back of my head rather than behind the eye and temples.
Posted By: PsSpa_M_1989 Re: Booster Dose? - 08/31/21 11:27 PM
My rheumatologist says that ACR recommended (following CDA guidance) to withhold administration of TNF-alpha blockers for a week after COVID-19 vaccination. So I am planning to get my third shot the day after normal injection day and then not take my regular Humira injection for another week.

Also a Belgian research team found the following about antibody response:

1. Better response in Moderna vs Pfizer;
2. Better response in longer time interval between shots;
3. Better response in people younger than 35.

https://jamanetwork.com/journals/jama/fullarticle/2783797
Posted By: jrprusak Re: Booster Dose? - 09/02/21 06:39 PM
I think some may be confused but the covid vaccine 3rd dose is not the same as the Covid booster. The booster is not out yet..as I understand it is still in the development phase...
Posted By: Mary Beth Re: Booster Dose? - 09/09/21 10:50 PM
Originally Posted by PsSpa_M_1989
My rheumatologist says that ACR recommended (following CDA guidance) to withhold administration of TNF-alpha blockers for a week after COVID-19 vaccination. So I am planning to get my third shot the day after normal injection day and then not take my regular Humira injection for another week.

Also a Belgian research team found the following about antibody response:

1. Better response in Moderna vs Pfizer;
2. Better response in longer time interval between shots;
3. Better response in people younger than 35.

This is what I did with both my second and third doses. I got my shot a day or two after my Humira should have been taken, then waited 5-7 days to take the missed dose.

Based on how bad I felt from the vaccine, I’m thinking I had a fairly good response but I’ve not had an antibody test.
Posted By: Mary Beth Re: Booster Dose? - 09/10/21 10:00 PM
Not about booster/ third dose per se, but interesting results. Please note that all three US vaccines are very effective, it’s a matter of degree.

https://www.cbs42.com/news/health/c...elta-variant-of-covid-19-than-pfizer-jj/
Posted By: Mary Beth Re: Booster Dose? - 09/18/21 03:20 PM
I wanted to share something tangentially related to my third Moderna dose.

I had a routine doctor appointment about three-and-a-half weeks after my third Moderna dose. Reviewing my records, we decided it was time for a tetanus booster. I had one of the Tdap shots.

In the past, I remember a sore arm from tetanus boosters and not much else.

I had this particular vaccine around 10:30 am. By early afternoon I started feeling generally unwell and I was very cold. I took my temperature and it was 100.6

By evening it was 101 and I had body aches to go along with the fever. It mostly broke overnight and by about 30 hours post injection I felt ok.

I am assuming it was a reaction to the shot though of course there is a chance it was a coincidence and I had a viral illness. Other than the COVID vaccine I don’t recall ever having a fever after another shot (though the flu shot sometimes gives me mild chills).

I am speculating that its proximity to my COVID shot may have meant my immune system was still pretty revved up and just reacted very strongly.

Anyway, if you are due for any non-urgent vaccinations, it might be worth waiting at least a month or two after your COVID shot. My experience is just one story (anecdotes aren’t data) but I thought I’d share.
Posted By: WhiteCell Re: Booster Dose? - 09/19/21 01:12 AM
Thank you for the reporting of your experiences with the booster or 3rd dose. I was advised to wait 2 weeks after the flu shot which I received at work. I watched the CDC video meeting on the Pfizer vaccine 3rd dose now recommended for those >65 or immune compromised. They reported after eight months after the 2nd dose the 77% remains in the human body to protect against the CoV19 virus.

I come to this decision in the middle of a pandemic of which I am part of as an RN. I am traveling to a region of Washington State which is overwhelmed by this surge of very ill patients. I am glad the 3rd dose yields a level of protection which will allow me to work with them. I also have a high level protective hood.

Winston. May I inquire which brand of vaccine did you receive for all 3 doses?

Thanks

Cell
Posted By: TexasGirl Re: Booster Dose? - 11/20/21 06:00 AM
Hi
I’d really like to get your opinion on my case. Should I get the booster/3rd dose? I’m more afraid of getting another autoimmune disease that I have to suffer with. I’m on Cosentyx, but am considering stopping it for a few reasons.

I got a reaction about a week after my 2nd Moderna dose. I got pulsatile tinnitus and vertigo, which is basically like an episode of Menierre’s disease. I got lucky because I only had one episode. I’m afraid I’ll develop long term Menierre’s with a third dose. But I do have a child, who naturally puts me at a higher risk for COVID.

I have many autoimmune diseases now and have Reactivated Epstein Barr and high lymphocytes the last five years. I also have low natural killer cells, which is not good.

What would you do if it were you? Take my chances with Covid? Thanks! By the way, please don’t worry that you’ll sway me too much if you write your opinion. I really would like to hear opinions and will still make my decision.
Posted By: Mary Beth Re: Booster Dose? - 11/20/21 03:39 PM
Originally Posted by TexasGirl
Hi
I’d really like to get your opinion on my case. Should I get the booster/3rd dose? I’m more afraid of getting another autoimmune disease that I have to suffer with. I’m on Cosentyx, but am considering stopping it for a few reasons.

I got a reaction about a week after my 2nd Moderna dose. I got pulsatile tinnitus and vertigo, which is basically like an episode of Menierre’s disease. I got lucky because I only had one episode. I’m afraid I’ll develop long term Menierre’s with a third dose. But I do have a child, who naturally puts me at a higher risk for COVID.

I have many autoimmune diseases now and have Reactivated Epstein Barr and high lymphocytes the last five years. I also have low natural killer cells, which is not good.

What would you do if it were you? Take my chances with Covid? Thanks! By the way, please don’t worry that you’ll sway me too much if you write your opinion. I really would like to hear opinions and will still make my decision.

Hi! I’m sorry you had a reaction like that. I guess my own line of thinking is there is credible evidence that COVID infection itself can cause auto antibodies, and we have strong suggestions that other viral and bacterial infections can trigger autoimmune disease in some people.

So in my mind, I’d be weighing any potential risk of vaccine reaction against risk of COVID itself + long haul COVID.
Posted By: TexasGirl Re: Booster Dose? - 11/24/21 06:30 PM
That’s a great point, Mary Beth! I think I got much worse when I got reactivated Epstein Barr a few years ago. I might be susceptible to that with COVID too. Thank you!
Posted By: Brody96 Re: Booster Dose? - 11/27/21 02:24 AM
Hey everyone! I got my third dose a few mornings ago and I want to share my experience for anyone else anxious/nervous about it. I’ll admit, I put off getting my third dose for awhile because of anxiety. I got Pfizer for all three doses. The side effects from this one were very similar to the first two doses. My arm was very, very sore starting ~8 hrs after the shot and took about 48 hrs to let up. I had really bad body aches starting ~12 hrs after the shot and they lasted for about 24 hrs. The only lasting side effect I have now is swollen/painful lymph nodes in my armpit on the side I was vaccinated, but this happened after the first two doses as well. Overall I am relieved to have it over with, and it wasn’t nearly as bad as my anxiety had me convinced it would be. Hope this helps someone! smile
Posted By: Winston Re: Booster Dose? - 11/27/21 05:04 PM
Sorry, WhiteCell, I just saw your question. I haven't been following the thread for a while. I got the Moderna vaccine for all three doses.
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