Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
Re: Average Age?
saxguy #219506 10/16/11 02:57 AM
Joined: Oct 2011
Posts: 6
S
Registered Visitor
Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 6
I am a 46 year old male that was diagnosed when I was 43. Been on Enbrel for two years and now Humira for a year.

I wonder what the future will hold for me.


diagnosed with undiff spondy in 2008. Tried Enbrel for two years-became ineffective. Currently on Humira.
Re: Average Age?
snake #219677 10/18/11 01:35 PM
Joined: May 2011
Posts: 22
Registered Visitor
Offline
Registered Visitor
Joined: May 2011
Posts: 22
Pain started at age 31, mostly in my hips and lower ribs.
Had flares and remissions, with flares getting longer and remissions shorter until I was in pain 95% of time by age 40.
Dx with AS at age 46. SI joints totally fused, bone spurs in back.
HLA-B27+
Enbrel from age 46-50. All pain stopped.
Nerve damage at 50. Stopped Enbrel. Pain even worse than before.
Pain mostly in back, ribs, and neck.
NSD for past year. Getting good results now and able to continue work.


AS symptoms started 1991. Official dx in 2006, with HLA-B27+, SIJ totally fused, bone spurs in back, and extreme rib/hip pain. Other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage. Now getting good results with no-starch diet.
Re: Average Age?
gbash #219679 10/18/11 02:32 PM
Joined: Dec 2010
Posts: 1,254
S
Registered Visitor
Offline
Registered Visitor
S
Joined: Dec 2010
Posts: 1,254
It hit us both around the same age. I guess we're lucky it didn't start sooner, which is more common.

I'm a 45 year old male and was diagnosed at the beginning of the year. I started flaring around age 42 but was undiagnosed for 3 years.


Spondylitis since '08, finally diagnosed Feb '11.
Enbrel 50mg/week.
Re: Average Age?
seekonk #219686 10/18/11 03:51 PM
Joined: Apr 2010
Posts: 453
M
Registered Visitor
Offline
Registered Visitor
M
Joined: Apr 2010
Posts: 453
I was 30 when symptoms began, 31 when diagnosed I believe.

Re: Average Age?
michelly #219766 10/19/11 06:07 AM
Joined: Nov 2010
Posts: 2,008
I
Registered Visitor
Offline
Registered Visitor
I
Joined: Nov 2010
Posts: 2,008
I was about 17 when the first symptoms began for several of my autoimmune/autoinflammatory diseases (including my arthritis), and 20 when I had my first significant arthritic flare that I couldn't ignore anymore. I was diagnosed at age 21.

My diagnosis was delayed because I didn't have RA, essentially. I'm seronegative in every which way, and when I went to my GP with the earliest symptoms in my hands, when my bloodwork was normal, I was declared normal. Being young and not used to advocating for myself, I convinced myself that nothing was wrong for quite some time even as I got worse and worse and more and more joints joined the club. D'oh.

The good news is that Humira is doing wonders for me now. May it continue to do so!


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Re: Average Age?
sweet #224792 01/08/12 02:14 AM
Joined: Jul 2011
Posts: 57
J
Registered Visitor
Offline
Registered Visitor
J
Joined: Jul 2011
Posts: 57
I started having problems a month after I turned 25 in January 2007. My hair was starting to fall out, my joints started to ache and swell, I was losing weight without even trying, etc.

Between March 2007 and September 2010, I saw at least six different doctors, each had their own theory of what was wrong with me. I had lots of blood draws, X-rays, 1 ultrasound, trips to the doctors and physical therapy sessions and one ER trip.

In September 2010, when I was 28, I was finally diagnosed with AS and on the right track to better health.

Re: Average Age?
jamielynn182 #224794 01/08/12 04:34 AM
Joined: Aug 2010
Posts: 371
Registered Visitor
Offline
Registered Visitor
Joined: Aug 2010
Posts: 371
I was 27 when I was dx. My symptoms started with eye inflammation the year before but there was no way of dx. However i was dx after being dx with crohn's which i have only had random symptoms for including aniema which i've had for many years. it's all one big over lapping mess.

It's weird i keep thinking of doctors appt. that year and wondering what if doctors had thought outside the box like most of you.


Diagnosed: ankylosing spondylitis Feb '10, Crohn's Nov '09, GERD Aug '09, Scleritis May '08, Scoliosis '92
HLA-b27 negative
Surgery: Scoliosis Spinal fusion July '99
Current Meds: Humira, Asacol, Reglan, Dexilant, Tramadol, Maalox, and Xibrom (Bromfenac).
No more sulfasalazine and Iron
Re: Average Age?
outlier #225446 01/15/12 10:07 PM
Joined: May 2011
Posts: 22
Registered Visitor
Offline
Registered Visitor
Joined: May 2011
Posts: 22
I was 30 when my symptoms first started. I had a couple of episodes before then, but I think those were from some heavy lifting on my jobs.


AS symptoms started 1991. Official dx in 2006, with HLA-B27+, SIJ totally fused, bone spurs in back, and extreme rib/hip pain. Other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage. Now getting good results with no-starch diet.
Re: Average Age?
gbash #225450 01/15/12 11:02 PM
Joined: Oct 2011
Posts: 971
S
Registered Visitor
Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
I think it probably started in my mid 30's, when I had bad lower back problems, although it might have been sooner as I had problems with one knee from my teens and what I thought were running injuries throughout my 20's. My back settled down alot after a few years - only causing problems if I stood still too long or laid around too much when I was sick - but throughout my 40's I would have several weeks of pain (flares) in different places at different times - knees, ribs, tailbone, hips, feet, hands, wrists. Nobody put it all together until last year, when my hands and achilles were really really sore and swollen, and my back and sij xrays showed calcification etc.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Page 3 of 3 1 2 3

Moderated by  ElinAslanyan 

Link Copied to Clipboard
Powered by UBB.threads™ PHP Forum Software 7.7.4