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Mis-diagnosis
#219507 10/16/11 03:13 AM
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Has anyone else been misdiagnosed with GOUT?

Had very enlarged swollen knees. Went to an Ortho doc and got very PAINFUL steroid injections in both knees. Several gout meds later...symptoms continued.

Took me three months to get into a rheumo doc and finally diagnosed with undiff spondy.

LONG 3 uncomfortable months.


diagnosed with undiff spondy in 2008. Tried Enbrel for two years-became ineffective. Currently on Humira.
Re: Mis-diagnosis
snake #219508 10/16/11 03:55 AM
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hey snake, did they do any fluid analysis? they took tons of fluid off my knees when i was in my teens. now i know it was part of the AS as i still have the problem.

i also have very swollen red feet which many untrained folks call gout.

the key to that dx is...is your uric acid reading high?

are you keeping copies of the lab tests, xrays, reports as you get them taken? it is really important to have that back up information to show you have been down some road some new doc wants to take you down.

glad you got the dx. now, start treatment.

s.

Re: Mis-diagnosis
#219591 10/17/11 02:26 PM
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Not gout, but I (and many here) was originally misdiagnosed with fibromyalgia. In my case, the wait for acknowledgment of my likely underlying spondylitis was about 3 years from the first rheumy I saw. Not untreated during that time, but yeah, a long 3 years.


Jen, 42, happy partner of James and Moma to Evan, 14, & Lucy, 12.5 (Crohn's dx @ age 3; on Remicade since April 2010.) I take piroxicam, Flexeril, & Nucynta ER nightly. 3 anti-TNFs didn't pan out for me.

"Science is the father of knowledge, but opinion breeds ignorance." -- Hippocrates
Re: Mis-diagnosis
JenInCincy #220026 10/23/11 03:56 PM
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no but when i first got sick especially with plantar fisitis that was my thought. I called up my room mate and was like i am the only vegetarian every with gout.


Diagnosed: ankylosing spondylitis Feb '10, Crohn's Nov '09, GERD Aug '09, Scleritis May '08, Scoliosis '92
HLA-b27 negative
Surgery: Scoliosis Spinal fusion July '99
Current Meds: Humira, Asacol, Reglan, Dexilant, Tramadol, Maalox, and Xibrom (Bromfenac).
No more sulfasalazine and Iron
Re: Mis-diagnosis
outlier #220032 10/23/11 10:26 PM
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Originally, my knees swelled severely and were my only symptom. The doctor suspected gout. Drained both knees, which was anabsolutely awful experience. They then diagnosed me with Lupus, which later was over turned due to the fusing in my neck. Be careful. Misdiagnosis, unfortunately, is not uncommon.


Rachel
ANA+, HLA-B27+, started Remicade June 2008, switched to Enbrel September 2010, switched to Humira April 2011, stopped biologics September 2011. Fusion already started, 25 years old.
Re: Mis-diagnosis
snake #220401 10/28/11 03:07 PM
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I understand the frustration of being misdiagnosed. I was originally tested for gout by a podiatrist, who was trying to get a handle on my plantar faciitis and severe swelling and pain in my feet about a year ago. This was after a year of joint pain in one elbow and in my neck began. Got the "buy a new pillow" deal from my PCP after x rays were negative. RF factor was negative so 1st Rheumy misdiagnosed me with bacterial migratory arthritis and was prescribed anti-biotics and took them faithfully for 6 months; no relief from symptoms whatsoever. Hands & shoulders became swollen and painful. Long story short,after testing positive for HLA-B27 gene and finding enthesitis in new xrays,a new Rheumy finally diagosed me in late July with AS (and "possibly" RA) and put me on Prednisone and Mx, will start Enbrel this month. Symptoms have improved in my hands and shoulders.

After I discovered this site, I realized that although my symptoms started about 2 years ago and I was misdiagnosed, many others took a longer, more painful road to a correct diagnosis.

Hang in there.

Last edited by JLR; 10/28/11 03:17 PM.

50 year old father of 4, & HLA-B27 positive. Teacher and coach for 25 years. Diagnosed with "nonspecific seronegative inflammatory spondyloarthropathy" (AS) Aug 2011 after 2 years after symptoms started.
Rx: Prednisone/Methotrexate/Peroxicam(NSAID)/Folic Acid/Pantoprozole
Re: Mis-diagnosis
JLR #220402 10/28/11 04:15 PM
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it seems like if it's not rheumatoid arthritis many Rheumy don't want to deal. My 1st rheumy was like it's not rh it's not lupus can't help you, less then 3 months later crohn's was dx. he could have been called the genius doc which is what i call my GI. All it takes is a little curiosity as my GI proved the symptoms that make up crohn's had not changed.


Diagnosed: ankylosing spondylitis Feb '10, Crohn's Nov '09, GERD Aug '09, Scleritis May '08, Scoliosis '92
HLA-b27 negative
Surgery: Scoliosis Spinal fusion July '99
Current Meds: Humira, Asacol, Reglan, Dexilant, Tramadol, Maalox, and Xibrom (Bromfenac).
No more sulfasalazine and Iron
Re: Mis-diagnosis
outlier #220440 10/29/11 04:13 AM
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Yes, even specialists have their favorites and blind spots! We had a rheumy in our area that would not see anyone with fibro or any type of back pain, no matter the cause. At least he was honest and up front, but sheesh.

The last rheumy I saw said she didn't want to treat the arthritis, she didn't want to treat the fibro and I was too complicated of a case for her to work with. Then was upset with me when I wanted to switch to a new doctor.


DX with Crohn's colitis 1992, hypothyroid probable autoimmune 1999, Fibromyalgia 2003, DM II 2005, and Spondylitis 12/11 Started Humira 08/2011
Re: Mis-diagnosis
sunflower #220925 11/07/11 04:07 AM
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I can relate to many of you. It took doctors about three years to find out what was wrong with me. Swollen joints, tiredness, and stiffness plagued me for a period of time until I was finally diagnosed last year. My last straw came just after my second rhemy ran a bunch of tests and while waiting for a diagnosis, my left knee was badly swollen and I had to have fluid drained off by an orthopedist. It was not a fun experience and I hope I never have to go through that again. Since starting treatment and getting the right diagnosis with AS, I have not had any major problems yet.

Snake, good luck with your treatments and I hope you start feeling better soon.

Diagnosed with AS in September 2010
Remicade (once every eight weeks) Methotrexate (6 pills once a week) Folic acid and B-12 once a day.

Re: Mis-diagnosis
jamielynn182 #220933 11/07/11 10:05 AM
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It took me over 15 yrs to get a diagnosis, but I did not have constant disease activity those 15 years. My 1st flare that i can remember was when I was 15. My back & neck pain was blamed on a car accident I'd been in over a year prior. My knee pain was blamed on knee mechanics & hypermobility of my knee joints. My ankle pain was blamed on weak ankles. Subsequent flares were blamed on everyone in my family having a bad back, being overweight, old injuries such as the car accident, toting around small children, chronic fatigue syndrome, my mild bipolar disorder, etc. about 5 years before my disease kicked into full gear, I got a bad case of plantar fasciitis that would not go away. Recommended shoes, night splints, orthodics, nothing seemed to help. I had horrific heel pain. I was finally diagnosed with Achilles tendinitis & treated properly & the heel pain got better. Birkenstocks typo care of the PF.

I finally was sent to a rheumy a few years ago when my hands started killing me & my back flared at the same time. My pcp ran an arthritis panel & my SED rate was through the roof. 4 months later I saw a fnp at a rheumy 's office. They ran a bunch of bloodwork & tons of X-rays. Then I took all those to another office since I hated the fnp. My new rheumy diagnosed me with some form of spondy at my 1st visit. Finally I had answers. When you add in my other problems/diagnoses, an autoimmune inflammatory disease being at the root of it all just makes sense.





-Jenn. SAHM with 4 kids. Diagnosed with AS('08) Psoriasis, probable Sjogrens(won't do lip biopsy), Fibromyalgia, Chiari Malformation, PCOS, endometriosis, diabetes(type 1), metabolic syndrome, mild hypothyroidism...
Remicade & MTX.

*I am in no way associated with the medical profession other than doing my best to keep them in business. Any advice I give is purely my own opinion and should not be substituted for qualified professional care.

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