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Good news and some bad too!
#223726 12/22/11 02:43 AM
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jackieb Offline OP
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I was one of the lucky ones to get my disability on the first try. I applied in July, after my husband lost his job and I didn't know how we were going to pay for my meds. I did not have to see their docs or get a lawyer. I consider myself blessed, the Lord was looking out for me for sure. According to the letter they said my back was severe and I was awarded disability.
The bad news is I have to go have another epidural injection tomorrow. First one lasted 3 weeks. According to the dr. when I saw him on Monday, I am going to have pain as long as I live, no duh! Even with surgery he says pain would be with me. I just want to have tolerable pain, not crying pain.
Any way. I just wanted you all to know you can get disability. I thought it would take years, like my cousin and friends I know. I praise the Lord for his goodness


Jackie
Re: Good news and some bad too!
jackieb #223732 12/22/11 03:59 AM
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oh jackie, my heart breaks for you. i want you to know that God does look out for you. i know he has been taking care of me, too.

somedays it is just so difficult to see the way. i know you are suffering and i just want you to know i am thrilled for the disability payments. and saying prayers for your relief from the pain. any way you can find.

sequoia

Re: Good news and some bad too!
#223737 12/22/11 05:23 AM
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Jackie, how great to hear that people who truly need disability actually get it the first time they apply!! I guess I am different, I see the epidural as good news ... the fact that the first one lasted 3 weeks is very encouraging! I've had so many I lost count, but none ever helped me. I hope this one will give you even longer lasting relief.


Jen, 42, happy partner of James and Moma to Evan, 14, & Lucy, 12.5 (Crohn's dx @ age 3; on Remicade since April 2010.) I take piroxicam, Flexeril, & Nucynta ER nightly. 3 anti-TNFs didn't pan out for me.

"Science is the father of knowledge, but opinion breeds ignorance." -- Hippocrates
Re: Good news and some bad too!
JenInCincy #223843 12/23/11 11:00 PM
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Had injection and went home feeling good woke up this morning with very low blood pressure,60/40. O could not stand without the room spinning.was told to hydrate and feeling better. Last b/ p was 90/70.


Jackie
Re: Good news and some bad too!
jackieb #223855 12/24/11 05:07 AM
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I'm glad you were awarded so quickly. I'm one of unlucky ones that is still waiting after 1.5 years.

My doctor says I stuck with pain forever too. ugh.


AS July 2010
Failed remicade and humira | Now trying enbrel
mom to 1 daughter
Re: Good news and some bad too!
serena70 #223874 12/24/11 06:52 PM
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Serena, I am sorry yours is taking so long. Someone ay my husbands office helps those that are being denied. If you can find someone like that and not an attorney you can save time and money.


Jackie
Re: Good news and some bad too!
jackieb #223875 12/24/11 07:18 PM
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Thats scary low blood pressure. Glad it came up quickly enough. Good news about the disability too.


Cauda equina type neurogenic bladder problems. Coeliac disease. Sicca syndrome. Ataxic gait and use crutches. Non-specific gut problems. Current treatment: Low dose naltrexone, low starch diet (Guts shredded by NSAIDs. Previously diclofenac worked well, not eligible for anti-tnfs, hypersensitivity to SSZ). Also short bursts of pred for bad flares
Re: Good news and some bad too!
cemc #223883 12/24/11 09:04 PM
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I actually thought I might die. I called a nurse friend and she suggested fluids. So far this injection has not helped.


Jackie
Re: Good news and some bad too!
cemc #223885 12/24/11 09:04 PM
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I actually thought I might die. I called a nurse friend and she suggested fluids. So far this injection has not helped.


Jackie
Re: Good news and some bad too!
jackieb #223972 12/27/11 04:45 AM
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Jackie, you need to talk to your doctor to find out why your blood pressure dropped so low. You may have a reaction to the medicine they injected you with. If so, you may not want to do that again. Take care!


DX with Crohn's colitis 1992, hypothyroid probable autoimmune 1999, Fibromyalgia 2003, DM II 2005, and Spondylitis 12/11 Started Humira 08/2011
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