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Re: Do Doctors Scoff at Your Diagnosis? Need Advice!
mrduncan77 #263495 01/17/14 12:04 AM
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No, I'm not likely to move forward with injections from that doctor, simply because of how he treated me. I'll find someone else, or continue with my old pain specialist. I don't need to be subjected to his patronizing and disrespectful bedside manner. Treatment matters, but so does compassion as a human being.

I don't care if they specify that my disease is not ankylosing....I haven't fused yet (and may never). Having an SpA of any kind isn't something I'd wish on anyone, they can call it whatever they want. I don't know what they'll call our peripheral arthritis that goes along with our inflammatory spinal arthritis. At this point I just call it a Pain In The Ass! LOL

Re: Do Doctors Scoff at Your Diagnosis? Need Advice!
RAHMBA #263499 01/17/14 12:24 AM
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Originally Posted By: RAHMBA
Originally Posted By: mrduncan77
Sounds like there are other women out there who've gotten the same treatment, which is unfortunate and ridiculous.


Absolutely a big problem. I personally think that's why a nr-axSpA diagnosis is important.


Bingo. And thats where its going. Sooner than Later. Most AS is anything but.

Re: Do Doctors Scoff at Your Diagnosis? Need Advice!
mrduncan77 #263500 01/17/14 12:28 AM
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This didn't happen because you are female, B27-, and he is a non-rheumy. Pardon me for saying so, but this is because that man is an a$$. I have never experienced behavior this disrespectful, outrageous, and ignorant - and I'm also female and B27- with normal looking x-rays and labs!! Plenty of doctors, including rheumatologists, have questioned the diagnosis in my case, but never so rudely. And as others have mentioned - it's not the pain doc's place to confirm/deny the diagnosis but to assist you in managing your pain! This guy is obviously clueless about the AS diagnostic criteria and spondylitis in general.

You asked what you should say in response to this treatment. Honestly, I am pretty assertive but I have to say I'm not sure what I would do/say if a doctor treated me that way (other than never returning, of course.)

On the SIJ injections - if your old pain doc will/can do them and you are willing to travel, it's a good plan to just stick with what was working. If this guy was so emotionally caustic he may be rough with the procedure, too. I had bilateral SIJ steroid injections twice. I did not have sedation (needed to drive myself home afterwards) and had previously had numerous epidural steroid injections also without sedation. For ALL my injections my pain doc did a lot of local numbing. She also proceeded slowly and ensured I was comfortable; she urged me to tell her if it hurt and that she would give more local numbing medicine.

Just my experience FWIW smile

Oh and the peripheral symptoms are just that - peripheral symptoms. I agree that "peripheral spondylitis" seems like an oxymoron but hey, I didn't go to medical school :p Clearly the disorder encompasses more than the spine and a new name would probably make sense but let's not hold our breath laugh

Welcome to the forums - so sorry for the cause of your introduction, though!!


Jen, 42, happy partner of James and Moma to Evan, 14, & Lucy, 12.5 (Crohn's dx @ age 3; on Remicade since April 2010.) I take piroxicam, Flexeril, & Nucynta ER nightly. 3 anti-TNFs didn't pan out for me.

"Science is the father of knowledge, but opinion breeds ignorance." -- Hippocrates
Re: Do Doctors Scoff at Your Diagnosis? Need Advice!
mrduncan77 #263625 01/21/14 06:36 PM
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Wow--that really sucks for you! So sorry you were treated that way. I've had several doctors/PTs show their ignorance and think I can't have AS (really more like SpA) because I'm HLA-B27 neg. One hospital doctor wrote that it doesn't look like I have the "face" of AS, whatever that means. (Image of someone totally fused or hunched?)

It's hard to know what to say in that situation. I'm sure you were flustered. I personally wouldn't go back to him. You need to be able to trust your doctors and know they take you seriously. My pain doctor has never questioned my diagnosis. I wish you good luck whichever route you go.


Amy

27 years old
AS diagnosis 2013; neck pain for seven or eight years, and spreading multiple-joint pain for about two years
Also: Fibromyalgia, Hashimoto's, hypoglycemia, Raynaud's phenomenon
Meds: Remicade, Norco (10-325 mg), Gabapentin, allergy shots, Prozac, Synthroid (25-50 mcg)
Re: Do Doctors Scoff at Your Diagnosis? Need Advice!
tropicalisland #263626 01/21/14 06:51 PM
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tropic, I added this book to my wish list! It sounds good.


Brenda

undifferentiated spondyloarthropy, HLA-B27+, iritis, Vit D3: 6000 IU/day, trochanter bursitis, Joint Hypermobility Syndrome, migraines, SI joint dysfunction/hypermobility, DDD L4/L5 and L3/L4, straightening of cervical spine, impaired glucose tolerance, sleep apnea.
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