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Re: Personal update
lily401 #266665 05/23/14 08:52 PM
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Fingers crossed that it works well for you!


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Personal update
lily401 #266730 05/27/14 01:28 AM
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All I can say is wow! Am I supposed to feel this good so soon? Humira has been a wonder drug after only three days! I went to a wedding Sunday after sitting in the car for five hours. I felt great! No stiffness no hip pain. Danced at the reception and never felt better! I am praying this continues for a very long time! I am so very grateful to be able to feel good again. I was afraid and very skeptical but I am glad I took this step.

Liz


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
Re: Personal update
lily401 #266740 05/27/14 06:13 PM
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So glad you found something! Good new Indeed!


Female, 29 - loving wife & mommy to one <3
Finally diagnosed in Oct 2011
HLAB27+
Remicade - Oct 2012
Fibromyalgia - June 2013
Tendonitis - February 2014
Humira: Failed / NSAIDS: Failed / Steroid Epidurals: Failed, caused more pain / Physical Therapy, Massage Therapy, and Chiropractics: Failed / gabapentin: Failed
Re: Personal update
lily401 #266748 05/28/14 02:41 AM
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Liz, congrats! Isn't it fabulous how you can feel almost normal again finally, after feeling so awful for a long time? I'm so thankful for biologics! They don't always work and some work better than others for individuals, but when they do work, it can give you your life back. I hope you have continued success. If not, try another one! My first one (Enbrel) only worked for a few months (which I'm still grateful for), but my second one, Simponi has given me 6 months of feeling pretty good, so far. If it falters, I'll be quick to try another. So glad you had quick results!

Barbara


Barbara - 51 year old female, married, one adult child (28 yr old)
HLA B27+, symptoms since late 20's, explosion of symptoms age 38, dx age 49 (2012) undifferentiated, now changed to PsA (axial & peripheral with mild psoriasis)
Started MTX October 2012, started Enbrel April 2013, switched to Simponi August 2013. Switched to Humira 2014.
Surgical spinal cord decompression/discectomy/fusion C4 to C7 (ACDF)- Aug 2011.
Re: Personal update
lily401 #266751 05/28/14 02:49 PM
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Originally Posted By: lily401
All I can say is wow! Am I supposed to feel this good so soon? Humira has been a wonder drug after only three days! I went to a wedding Sunday after sitting in the car for five hours. I felt great! No stiffness no hip pain. Danced at the reception and never felt better! I am praying this continues for a very long time! I am so very grateful to be able to feel good again. I was afraid and very skeptical but I am glad I took this step.

Liz


see this is what I dislike about biologics. Of all the info I've read or gleaned from doctors about 6 weeks or longer is when you may notice feeling better, then a post like this ^^^ says 3 days??

How can there be such a wild swing in results?


Last edited by factoryfeel; 05/28/14 02:52 PM.
Re: Personal update
lily401 #266752 05/28/14 03:09 PM
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That swing can vary pretty easily depending on the mechanism of the bio. and the source of your pain.

I've not heard the 6 weeks as every drug is different. Not just with bios but with every med, you need to calculate roughly 4 times the dosing rate before you can sustain a half life between doses. which is why the IV types usually have loading doses as do some of the injectables.

I'm not sure why you would hate it if they worked faster or a lower dosage/half life

Re: Personal update
lily401 #266758 05/28/14 06:37 PM
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I am just reporting what has happened to me. It seems as if it is working. I am sorry if you haven't had the same response. I am happy for anyone that gets relief at anytime. We are all different.

Liz


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
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