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Going onto Humira
#266762 05/28/14 09:37 PM
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Sean O Offline OP
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It looks like I am going to be on Humira. It is a bit of a blow financially (I have a big co-payment) but I cannot go on with the daily pain.

How effective has it been for those of you who take it? Does it markedly decrease your pain level?

I am also hoping it will slow fusion in the effected area of my spine. Is that how it works?

Any stories on your results with Humira are appreciated.

Sean


Male, mid 50s, Dx Reactive Arthritis 1981. AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Some bowel issues, anemia. Inflammation of the joints in hands and feet.
Re: Going onto Humira
Sean O #266767 05/28/14 11:24 PM
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Sean, you going through private insurance or trillium? We are currently trying to build a case for coverage through trillium for humira. I actually applied for trillium due to maxing out our drug coverage back in feb or march but haven't heard anything yet. :o/


Officially dx'ed Nov/10 after being symptomatic 10+ yrs. HLA-B27 positive. 200mg Celebrex twice a day, Targin for pain. Started SSZ in Nov'13 for peripheral issues. Jan '14 added Gabopentin for SI flare related nerve pain. Nov '14 added MTX to the mix. July '15 liver enzymes went crazy and off SSZ and MTX. Back on both at reduced dosages in Aug'15. March '16-son#1 dx'ed AS

Re: Going onto Humira
Sean O #266768 05/29/14 12:28 AM
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I am going through my work insurance. It works out to be slightly cheaper than for me to go through Trillium. I am especially lucky because all my insurance wants is that the Humira be prescribed. No prequalification requires. So I won't complain anymore.

We are lucky to have Trillium though as a backup.


Male, mid 50s, Dx Reactive Arthritis 1981. AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Some bowel issues, anemia. Inflammation of the joints in hands and feet.
Re: Going onto Humira
Sean O #266772 05/29/14 03:33 AM
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I've been on Humira for 3 months. I'm noticing subtle changes, but no big OMG moment like some have. But I'll take subtle as long as the changes continue.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Going onto Humira
Sean O #266976 06/06/14 07:18 PM
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I started Humira almost six months ago as a dual treatment for AS and ulcerative colitis. I have been virtually pain free since I started (also no UC symptoms). The change was noticeable after just a few days. I think I may be one of the fortunate ones there. I can't help but feel another flare is inevitable, or worse yet that it may stop working eventually, but I will enjoy life to the max while it lasts.


32 year old male
Diagnosed July 2013 with Ulcerative Colitis
Diagnosed November 2013 Ankylosing Spondylitis (symptoms since 2001)
Current meds: Lialda, Humira; omeprazole and cyclobenzaprine as needed
Isoniazid, Pyridoxine until September 2014 for latent TB
Re: Going onto Humira
Sean O #267072 06/11/14 02:25 AM
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I just had my second injection of Humira and I feel great! No hip or back pain or stiffness. Some stiffness in my feet in the morning but it quickly goes away after I get moving. Most noticeable is that I can sit stand for long periods of time with no pain.


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
Re: Going onto Humira
Sean O #267095 06/12/14 01:31 AM
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Sean O Offline OP
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That is really reassuring.


Male, mid 50s, Dx Reactive Arthritis 1981. AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Some bowel issues, anemia. Inflammation of the joints in hands and feet.
Re: Going onto Humira
Sean O #267097 06/12/14 01:39 AM
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Good luck to you!


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.

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