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Re: Inflammation Galore!
diehardhusky11 #267024 06/09/14 01:46 PM
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Well, right now, I'm experiencing buttock pain, which has been constant since Friday. My hands, shoulders, feet, etc etc... the pain or the inability to use them comes and goes. I've had situations where I'm like the T-Rex. I can't reach.

Ahhh, well. The joy of arthritis.

H.


1998-2004 Rheumatoid Arthritis, remission 2004-2010, March 2010 to May 2014 (RA, AS, Inflammatory Arth, PsA) Enbrel user-use 25 mg pre-mixed 3x a week.(pre-mix has no latex)(Allergic to "Sure Click Enbrel"-has latex) Remicade June 2014 to current (Grandfather had AS, PsA) "We will intuitively know how to handle situations which used to baffle us."
Re: Inflammation Galore!
diehardhusky11 #267073 06/11/14 03:19 AM
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Update: Rheumy had an opening at 4pm today. Grabbed it.

The ride to the appt was.... painful. Brought my walker, but too painful. A wheelchair had presented itself, so grabbed it. However, the way I ride it... knees on the seat. No way I can sit.

Imagine the weird looks I got. Got into the examination room - immediately placed myself on the examination table - belly style.

Imagine more weird looks from the nurse and the doctor. Told him that I was on a current regimen 45mg of extended-release morphine with immediate-release morphine and still experiencing buttock pain, too painful to sit, even going to the bathroom.

He prescribed Humira. Stated that the diagnosis is "Sero-negative rheumatoid arthritis" However, from what I've read, it's pretty much Ankylosing Spondylitis. He said he has never seen anyone experience so much pain after only 10 days off of Enbrel and anyone in particular with that kind of "buttock" pain. He noticed the swelling in my toes... My hands were working, no stiffening yet.

I haven't started the Humira yet... waiting for the insurance. Should be okay. Hope to start within the next few days.

I'm grateful for the prayers to get me through that appointment.

I can't wait to be functioning again and wean myself off the pain meds. It's amazing how my body is attacking itself and the pain meds are not quite touching it.

Noticed other people are starting Humira. Hope we can compare notes. wink

H.


1998-2004 Rheumatoid Arthritis, remission 2004-2010, March 2010 to May 2014 (RA, AS, Inflammatory Arth, PsA) Enbrel user-use 25 mg pre-mixed 3x a week.(pre-mix has no latex)(Allergic to "Sure Click Enbrel"-has latex) Remicade June 2014 to current (Grandfather had AS, PsA) "We will intuitively know how to handle situations which used to baffle us."
Re: Inflammation Galore!
diehardhusky11 #267077 06/11/14 05:15 AM
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Glad you got in. I hope the Humira helps.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Inflammation Galore!
diehardhusky11 #267078 06/11/14 12:36 PM
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Good news! I am praying that the Humira works well.


Tia
Re: Inflammation Galore!
diehardhusky11 #267080 06/11/14 02:31 PM
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Thanks, everyone.

H.


1998-2004 Rheumatoid Arthritis, remission 2004-2010, March 2010 to May 2014 (RA, AS, Inflammatory Arth, PsA) Enbrel user-use 25 mg pre-mixed 3x a week.(pre-mix has no latex)(Allergic to "Sure Click Enbrel"-has latex) Remicade June 2014 to current (Grandfather had AS, PsA) "We will intuitively know how to handle situations which used to baffle us."
Re: Inflammation Galore!
diehardhusky11 #267081 06/11/14 05:09 PM
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wishing that you start feeling a whole lot better :-)

Yes, I believe 'seronegative rheumatoid arthritis' is spondyloarthritis. I am not sure why docs use that term. I suspect it has to do with insurance and the ability to rx RA meds to people without RA.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Inflammation Galore!
diehardhusky11 #267087 06/11/14 06:54 PM
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Yesterday - glued to the walker.
Today - glued to bed.


1998-2004 Rheumatoid Arthritis, remission 2004-2010, March 2010 to May 2014 (RA, AS, Inflammatory Arth, PsA) Enbrel user-use 25 mg pre-mixed 3x a week.(pre-mix has no latex)(Allergic to "Sure Click Enbrel"-has latex) Remicade June 2014 to current (Grandfather had AS, PsA) "We will intuitively know how to handle situations which used to baffle us."
Re: Inflammation Galore!
diehardhusky11 #267088 06/11/14 09:12 PM
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I too have your diagnoses. I started humira almost a month ago and it has worked great for me so far. Praying you will feel the same relief.

Liz


Liz..47 newly diagnosed with Spondyloarthis. Started Sulfasazine 2/4/14.
Re: Inflammation Galore!
diehardhusky11 #267091 06/11/14 09:59 PM
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'Seronegative Rheumatoid Arthritis' is Rheumatoid Arthritis in a patient that does not have a positive rheumatoid factor.


Not Me Too!
Re: Inflammation Galore!
diehardhusky11 #267093 06/11/14 10:46 PM
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Spondyloarthritis is very different from Seronegative RA. the damage is different, it "method of attack" is different, the proteins present are different, its symmetrical in presentation where spondylarthropathy is asymmetrical and the immunohistological features are vastly different (especially in regards to synovitis). FWIW 85% of Seronegative RA becomes positive at some point.

Incidentally the presence of rheumatoid factor is NOT definitive for diagnoses of RA. There are in fact a fair number of folk walking around with high rheumatoid factor and no RA. Actually Not me too had it dead on. You can "score" enough points to have RA with out a "positive" rheumatoid factor.

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