Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
Shingles????
#269784 12/26/14 08:30 AM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
Happy Boxing Day everyone!

Apparently I've got a case of shingles for Christmas.I went to the doctor today to check out my sore shoulder and numb thumb and forearm, thinking it could be a trapped nerve or maybe the numbness was a side effect from the Enbrel or mtx. I only mentioned the itchy rash in passing (I thought it was from the sun) and she looked at it and said "Aha, that looks like shingles". The rash is mostly on the same arm as the numbness, but a bit on the other side too, which is apparently not typical. It seems a bit atypical all round, but I have to assume she knows what she's talking about...

There are definitely mixed messages on the internet about how contagious it is and to whom. When I asked the nurse she said I could give people chicken pox if they haven't already had it, but also to avoid contact with the immune-suppressed and the elderly as they could be affected even if they've had chickenpox already. A bit late now as we've been spending time with family including elderly parents and doing lots of hugging as you do at Christmas...


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Shingles????
Shirley #269785 12/26/14 09:15 AM
Joined: Jun 2003
Posts: 2,993
T
Registered Visitor
Offline
Registered Visitor
T
Joined: Jun 2003
Posts: 2,993

Hi, Shirley:

I have wondered whether colloidal silver has any use against shingles. Have known several people who developed very painful conditions, but only after the fact.

Sometimes I get a psoriatic patch even after overcoming the basic AS symptoms through diet and antibiotics, but now rather lax diet and AS remains inactive (ESR<10 even at my advanced age...).

Hope this resolves rapidly, whatever You are trying,
HEALTH,
John


Nota Bene: I am not a medical doctor, and my views do not represent the opinions of the SAA
AS Resources
My Long, Boring AS Story
Professor Alan Ebringer Diet and AS

Re: Shingles????
Shirley #269786 12/26/14 09:20 AM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
Thanks John I'm taking anti viral medication for a week will see how it goes after that.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Shingles????
Shirley #269787 12/26/14 05:17 PM
Joined: Jul 2004
Posts: 1,130
N
Registered Visitor
Offline
Registered Visitor
N
Joined: Jul 2004
Posts: 1,130
You need to contact your rheumatologist immediately. (Your GP should have done so.). Shingles while on a TNF inhibitor is a very big deal and should be monitored very closely.


Not Me Too!
Re: Shingles????
Shirley #269788 12/26/14 06:04 PM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
Thanks his office is closed until mid January for Christmas holidays. Its a crazy time here as its the main summer holiday time. I'll try emailing him. I've assumed I shouldn't take enbrel or methotrexate in the meantime but not sure what else I should watch out for. The doctor I saw at an after hours centre said to come back if I feel worse.

Last edited by Shirley; 12/26/14 07:18 PM.

Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Shingles????
Shirley #269789 12/27/14 02:40 AM
Joined: Jul 2004
Posts: 1,130
N
Registered Visitor
Offline
Registered Visitor
N
Joined: Jul 2004
Posts: 1,130
Being on an anti-TNF puts you at increased risk of systemic or disseminated shingles. In someone with an altered immune system, systemic shingles can affect the central nervous system, the bloodstream, and the internal organs. It can lead to encephalitis, sepsis, and in very rare cases death. You should certainly stop both Enbrel and methotrexate, but you should also be treated with anti-virals and monitored for complications - including the possibility of going systemic. Patients with systemic shingles are generally hospitalized for IV anti-viral (and occasionally steroid) therapy. I am not trying to worry you unnecessarily, but shingles can become a very big deal while on an anti-TNF. Please be very careful.

I understand that your rheumatologist's office is closed until mid January, but surely he must have some other rheumatologist covering for him?


Not Me Too!
Re: Shingles????
Shirley #269790 12/27/14 03:14 AM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
Thanks. Yes I am on antiviral meds. Not sure who is covering but will try to find out. Im actually on holiday in a different city and the country virtually closes down over the festive seadon which also complicates things.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Shingles????
Shirley #269791 12/27/14 03:44 AM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
The office answer phone said to dial 111 if its an emergency or ring your family doctor. Family doctor will maybe be open on Monday.

The rash is not bad but it is on both arms and I feel a bit off colour. I could go back to the after hours centre but don't really feel likr the 3 hour wait.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Shingles????
Shirley #269792 12/28/14 12:20 AM
Joined: Apr 2013
Posts: 23
T
Registered Visitor
Offline
Registered Visitor
T
Joined: Apr 2013
Posts: 23
Hi Shirley,
So sorry to hear you've come down with this. I am currently taking Remicade and MTX and I will develop shingles on the back of my neck every so often. It is usually the week following my infusion (assumably when my immune system is at its lowest).

I have a standing Rx for antiviral meds and it usually clears up after a week. I have never stopped any other meds while taking the antiviral, and get regular checks of blood with my rheumy.

I am not a doctor, and would always advise you to exercise caution when dealing with shingles, but in my experience, there is no excess danger than what you might encounter with your normal regimen of meds.

Good luck and best wishes for a speedy resolution!


Greg (49)
AS
HLA-B27 neg, MTX, Folic Acid, Belbuca, Cosentyx (failed Enbrel, Remicade, Humira). Diclofenac caused kidney failure, Hard breakup with Norco.
Re: Shingles????
Shirley #269793 12/28/14 01:03 AM
Joined: Oct 2011
Posts: 971
S
Shirley Offline OP
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
Thanks Greg. I'm working on the assumption that I've got a mild case as I'm really not feeling too bad. The numbness is odd and the rash is a bit itchy but the pain isnt bad with the usual meloxicam with the occasional paracetamol. I am taking the antivirals and holding off on the enbrel and mtx in the meantime.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Page 1 of 3 1 2 3

Moderated by  Melissa Velez 

Link Copied to Clipboard
Powered by UBB.threads™ PHP Forum Software 7.7.4