Previous Thread
Next Thread
Print Thread
Managing complications
#273269 02/05/16 03:22 AM
Joined: Mar 2013
Posts: 2,177
S
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Mar 2013
Posts: 2,177
SAA is sponsoring a free webinar this Sat Feb 6 at 2pm EST. The topic is "Troubleshooting Spondylitis: Managing Complications". The speaker is Dr Lianne Gensler, who is a rheumatologist,AS expert, and researcher.

I have attended other webinars sponsored by SAA and I highly recommend them.

Read about it and register here: http://www.spondylitis.org/About-Us-Our-...g-complications



Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Managing complications
SouthernMoss #273270 02/05/16 04:53 PM
Joined: Feb 2016
Posts: 23
Registered Visitor
Offline
Registered Visitor
Joined: Feb 2016
Posts: 23
Will this webinar be posted on the website after it's given?


Arthritis issues since youth, back pains started at age 14 (1994). Dx with AS in January, 2016.
HLA-B27 Positive
Other Dx: GERD, Raynauds, Bursitis in Mutiple Joints
Re: Managing complications
SouthernMoss #273274 02/05/16 06:22 PM
Joined: Mar 2013
Posts: 2,177
S
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Mar 2013
Posts: 2,177
I'm sure it will. It usually takes a couple of weeks or so before they show up on the website.

The last webinar they had showed how MRIs and x-rays are used to help diagnose spondy and was very informative.
http://www.spondylitis.org/About-Us-Our-...nar-maksymowych


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Managing complications
SouthernMoss #273283 02/07/16 04:29 PM
Joined: Feb 2016
Posts: 23
Registered Visitor
Offline
Registered Visitor
Joined: Feb 2016
Posts: 23
Super, thank you!


Arthritis issues since youth, back pains started at age 14 (1994). Dx with AS in January, 2016.
HLA-B27 Positive
Other Dx: GERD, Raynauds, Bursitis in Mutiple Joints
Re: Managing complications
SouthernMoss #273298 02/10/16 04:15 PM
Joined: Jan 2008
Posts: 68
Registered Visitor
Offline
Registered Visitor
Joined: Jan 2008
Posts: 68
I sincerely hope the doctor will mention the cardiological implications of the HLA-B27 gene and AS. I gather that the complications are rather rare, but they are quite serious.
Here is a link from the National Institutes of Health. If it's not covered, it's worth investigating yourself.

Paul

http://www.ncbi.nlm.nih.gov/pubmed/6607060


Paul
Re: Managing complications
SouthernMoss #273379 02/20/16 02:35 AM
Joined: Mar 2013
Posts: 2,177
S
Registered Visitor
OP Offline
Registered Visitor
S
Joined: Mar 2013
Posts: 2,177
If you missed the live broadcast (as I did) on the 6th, the recording is now on the SAA website:
http://www.spondylitis.org/About-Us-Our-...s-comorbidities
(presentation in one video, Q&A in another)

Dr Gensler is an excellent presenter and has a knack for bringing information down to a level that a layperson can understand. I picked up several things I did not know, and reinforced or clarified some other things that I had been fuzzy on.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Managing complications
SouthernMoss #273392 02/23/16 05:58 PM
Joined: Feb 2016
Posts: 23
Registered Visitor
Offline
Registered Visitor
Joined: Feb 2016
Posts: 23
Thanks So-Mo!


Arthritis issues since youth, back pains started at age 14 (1994). Dx with AS in January, 2016.
HLA-B27 Positive
Other Dx: GERD, Raynauds, Bursitis in Mutiple Joints
Re: Managing complications
SouthernMoss #273406 02/25/16 10:50 PM
Joined: Aug 2015
Posts: 214
S
Registered Visitor
Offline
Registered Visitor
S
Joined: Aug 2015
Posts: 214
This was such a great presentation, I highly suggest it for everyone to watch.

Thanks Southern Moss for posting the link!


48 yo female, history of back pain since 1985, fatigue since 2009
-USpA diagnosis in August, 2015. Changed to PsA in 2016
-Erosions in finger joints
-HLA-B27 +
-Other: fibromyalgia dx in 2011 (wrong dx), endometriosis, severe pollen allergies
-Medications: Humira (since Oct, 2015). Weekly Humira start in Sept., 2016. Methotrexate (Dec. 2016). Aleve (as needed only), Lyrica, Tramadol, Baclofen, Vicoden, Tylenol, Xanax. Vitamin D, Vitamin B12, Folic Acid. Allergy Immunotherapy shots since 2009

Moderated by  ElinAslanyan 

Link Copied to Clipboard
Powered by UBB.threads™ PHP Forum Software 7.7.4