 Re: I intentionally infested myself with hookworms
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Joined: Mar 2013
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Shippingnews, why don't you post your question in a new thread. I hate to hijack scorpio's hookworm thread with a totally unrelated subject. 
Ginny - 58 year old female Dx with USpA in March 2013; changed to AS in July 2015 Iritis and Scleritis, both currently in remission unicompartmental knee replacements: right-June 2014, left-Aug 2018 MTX, Humira, Cyclobenzaprine, plus Celebrex as needed Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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 Re: I intentionally infested myself with hookworms
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Joined: Jul 2004
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Does this mean Cosentyx is better than anything else in the market or does it mean that they created something which has never been done before? No. It just means that Novartis was recognized as acheving a biotech breakthrough in developing Cosentyx. It is not in any way saying that the drug is superior in treating spondyloarthropathies than anything else currently on the market. Enbrel, humira, remicade, and some other biologics were similarly recognized when they first came out. http://www.prixgalien.com/en/05/02/winners-sorted-by-medical-field.htm /It is about time, they complete the comparison study between humira and cosentyx so, patients like me can have a clear guidance on what to take... Research and understanding of spondyloarthropathies has improved leaps and bounds in the past decade. I agree, it would be amazing if doctors could know exactly what drug was "Best" at treating a specific disease based on objective placebo controlled trials. Unfortunately, I don't think we are there yet for any disease. We may know that a specific class of medications works well, but I can't think of an instance where we know that X drug in a specific class works better for every person than Y drug in the same class. They are getting closer to that with cancer treatment (i.e.: genetic testing being used to determine treatment modalities.) Research will get there - just not yet. _______________
Last edited by NotMeToo; 11/02/16 09:58 PM. Reason: add info
Not Me Too!
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 Re: I intentionally infested myself with hookworms
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Joined: Jul 2006
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This is as least the third person who posts that they infected themselves with the worms and then never comes back to post progress
Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
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 Re: I intentionally infested myself with hookworms
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Joined: Mar 2016
Posts: 641
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I dunno, is that a good thing?
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 Re: I intentionally infested myself with hookworms
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Joined: Mar 2016
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I'll be honest actually... when I started coming here and reading the forum from the 1st post to the last it seemed to me that everyone started dying off. Forums with disease people are weird like that.
Eventually I was relieved to find that most of you aren't dead.
I wouldn't infect myself with the worms that everyone else in the world is trying to avoid. Maybe one day we will hear positive news, but if the starving kids in Malaysia are any indication of why people don't like being infected hookworms, i'll just run with that.
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 Re: I intentionally infested myself with hookworms
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Joined: Mar 2013
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It's only been 4 months, so maybe he just doesn't have much to share yet. As we all know, 4 months is not that long in the AS world...
Ginny - 58 year old female Dx with USpA in March 2013; changed to AS in July 2015 Iritis and Scleritis, both currently in remission unicompartmental knee replacements: right-June 2014, left-Aug 2018 MTX, Humira, Cyclobenzaprine, plus Celebrex as needed Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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 Re: I intentionally infested myself with hookworms
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Joined: Mar 2016
Posts: 641
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The best was the guy who thought that if he infected himself with AIDS that it would cancel out the AS immune system being active by being infected with a disease that takes out your immune system.
Personally I would like to see a montage of these exploits.
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 Re: I intentionally infested myself with hookworms
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Joined: Jun 2013
Posts: 65
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So this guy has never been heard of again? Creepy...
Female, 30 yrs. Diagnosed with AS in 2008 - symptoms since 2007. Psoriasis & PPP since 2018 ∴ PsA ¯\_(ツ)_/¯
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 Re: I intentionally infested myself with hookworms
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Joined: Jun 2012
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Honestly this sounds like a terrible idea.
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 Re: I intentionally infested myself with hookworms
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Joined: Mar 2016
Posts: 641
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Time flies, eh.
Guess that guy is probably no longer with us.
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