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Re: I intentionally infested myself with hookworms
scorpio #276559 11/02/16 07:19 PM
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Shippingnews, why don't you post your question in a new thread. I hate to hijack scorpio's hookworm thread with a totally unrelated subject. smile


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: I intentionally infested myself with hookworms
Shippingnews #276560 11/02/16 09:39 PM
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Originally Posted By: Shippingnews
Does this mean Cosentyx is better than anything else in the market or does it mean that they created something which has never been done before?

No. It just means that Novartis was recognized as acheving a biotech breakthrough in developing Cosentyx. It is not in any way saying that the drug is superior in treating spondyloarthropathies than anything else currently on the market. Enbrel, humira, remicade, and some other biologics were similarly recognized when they first came out. http://www.prixgalien.com/en/05/02/winners-sorted-by-medical-field.htm

Originally Posted By: Shippingnews
/It is about time, they complete the comparison study between humira and cosentyx so, patients like me can have a clear guidance on what to take...

Research and understanding of spondyloarthropathies has improved leaps and bounds in the past decade. I agree, it would be amazing if doctors could know exactly what drug was "Best" at treating a specific disease based on objective placebo controlled trials. Unfortunately, I don't think we are there yet for any disease. We may know that a specific class of medications works well, but I can't think of an instance where we know that X drug in a specific class works better for every person than Y drug in the same class. They are getting closer to that with cancer treatment (i.e.: genetic testing being used to determine treatment modalities.) Research will get there - just not yet.
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Last edited by NotMeToo; 11/02/16 09:58 PM. Reason: add info

Not Me Too!
Re: I intentionally infested myself with hookworms
scorpio #276612 11/07/16 03:34 PM
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This is as least the third person who posts that they infected themselves with the worms and then never comes back to post progress


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: I intentionally infested myself with hookworms
scorpio #276613 11/07/16 08:50 PM
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I dunno, is that a good thing?

Re: I intentionally infested myself with hookworms
scorpio #276614 11/07/16 08:54 PM
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I'll be honest actually... when I started coming here and reading the forum from the 1st post to the last it seemed to me that everyone started dying off. Forums with disease people are weird like that.

Eventually I was relieved to find that most of you aren't dead.

I wouldn't infect myself with the worms that everyone else in the world is trying to avoid. Maybe one day we will hear positive news, but if the starving kids in Malaysia are any indication of why people don't like being infected hookworms, i'll just run with that.

Re: I intentionally infested myself with hookworms
scorpio #276615 11/07/16 09:35 PM
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It's only been 4 months, so maybe he just doesn't have much to share yet. As we all know, 4 months is not that long in the AS world...


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: I intentionally infested myself with hookworms
scorpio #276616 11/08/16 12:02 AM
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The best was the guy who thought that if he infected himself with AIDS that it would cancel out the AS immune system being active by being infected with a disease that takes out your immune system.

Personally I would like to see a montage of these exploits.

Re: I intentionally infested myself with hookworms
scorpio #281409 09/16/18 07:51 PM
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So this guy has never been heard of again? Creepy...


Female, 30 yrs. Diagnosed with AS in 2008 - symptoms since 2007. Psoriasis & PPP since 2018 ∴ PsA ¯\_(ツ)_/¯
Re: I intentionally infested myself with hookworms
scorpio #281410 09/16/18 08:32 PM
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Honestly this sounds like a terrible idea.

Re: I intentionally infested myself with hookworms
scorpio #281411 09/17/18 01:22 AM
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Time flies, eh.

Guess that guy is probably no longer with us.

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