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ReA to AS, does it go away?
#283700 11/04/19 03:55 PM
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So I started thinking about Reactive Arthritis morphing into AS for none traditional AS folks. Does anyone know if it actually goes away for folks that now have spondalytitis, which started from Reactive Arthritis?

Countless Abx & two failed TNF (Enbrel & Humira) blockers and now a constant spine pain that isn't improving, i'm running out of ideas and not sure what to do.

HLB Neg. Does it and will it ever go away?

Inflammation & blood work markers complete normal.

Re: ReA to AS, does it go away?
worldofme #283702 11/05/19 08:04 AM
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It will never go away and can't be cured. So just like the rest of us you are doomed. I guess the key to it is to realize that there is only misery in this world for us. That being said, cheer up, with our lowered life expectancy, it'll be over soon enough and you can come back as a butterfly.

Re: ReA to AS, does it go away?
worldofme #283704 11/05/19 03:05 PM
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You're not doomed. Problem is people don't want to change their lifestyle to accommodate AS. People keep trying to fight it and you're not going to win. The sooner you work with it the better you'll be physically and mentally. Doctors do not treat they only prescribe. If that were the case then there would be no need for doctors. Also the information provided by doctors and specialist on how to improve symptoms without medications is wrong.

my rheumatologist couldnt understand why my pain markers on the sheet I kept filling out was dropping 2 points every four months after I stopped my tnf blockers. She now asks me for information which she also now helps other patients along with their medications.

If you want some information to live better quality of life send me a message.


Last edited by Imnotsure; 11/05/19 03:11 PM.
Re: ReA to AS, does it go away?
Imnotsure #283759 11/13/19 08:21 PM
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Originally Posted by Imnotsure
You're not doomed. Problem is people don't want to change their lifestyle to accommodate AS. People keep trying to fight it and you're not going to win. The sooner you work with it the better you'll be physically and mentally. Doctors do not treat they only prescribe. If that were the case then there would be no need for doctors. Also the information provided by doctors and specialist on how to improve symptoms without medications is wrong.

my rheumatologist couldnt understand why my pain markers on the sheet I kept filling out was dropping 2 points every four months after I stopped my tnf blockers. She now asks me for information which she also now helps other patients along with their medications.

If you want some information to live better quality of life send me a message.



I pmed you.

Re: ReA to AS, does it go away?
sdot #283761 11/14/19 12:37 AM
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Originally Posted by sdot
It will never go away and can't be cured. So just like the rest of us you are doomed. I guess the key to it is to realize that there is only misery in this world for us. That being said, cheer up, with our lowered life expectancy, it'll be over soon enough and you can come back as a butterfly.



Are you serious? Low life expectancy?

Re: ReA to AS, does it go away?
worldofme #283762 11/14/19 01:06 AM
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Originally Posted by worldofme
Originally Posted by sdot
It will never go away and can't be cured. So just like the rest of us you are doomed. I guess the key to it is to realize that there is only misery in this world for us. That being said, cheer up, with our lowered life expectancy, it'll be over soon enough and you can come back as a butterfly.



Are you serious? Low life expectancy?


For some people yes, but I think life expectancy is only reduced by several years. If you have psoriasis and AS then the life expectancy goes down much further to 62.3 years. Unfortunately, I have both.

Re: ReA to AS, does it go away?
sdot #283763 11/14/19 03:27 AM
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Hi there, it seems like you are in a tough place mentally with your AS. I want you to know I am thinking about you and hoping you find things that bring you happiness.


Diagnosed AS. HLAB27+. Naproxen, indomethacin, meloxicam, and ibuprofen failed. On Humira (first anti-TNF) since July 2019 with no result so far.
Re: ReA to AS, does it go away?
KatherineL16 #283764 11/14/19 03:31 AM
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I think happiness for all of us would be functioning healthy individuals. I can accept limitations but I cannot accept being crippled by this disease nor do I want others to suffer severely. I get really sad there are people with AS that are essentially bed ridden and my heart goes out to them.


Last edited by Caturday; 11/14/19 05:00 AM.
Re: ReA to AS, does it go away?
Caturday #283765 11/14/19 12:36 PM
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Originally Posted by Caturday
Originally Posted by Imnotsure
You're not doomed. Problem is people don't want to change their lifestyle to accommodate AS. People keep trying to fight it and you're not going to win. The sooner you work with it the better you'll be physically and mentally. Doctors do not treat they only prescribe. If that were the case then there would be no need for doctors. Also the information provided by doctors and specialist on how to improve symptoms without medications is wrong.

my rheumatologist couldnt understand why my pain markers on the sheet I kept filling out was dropping 2 points every four months after I stopped my tnf blockers. She now asks me for information which she also now helps other patients along with their medications.

If you want some information to live better quality of life send me a message.



I pmed you.


Hi, i got nothing from you as of yet.

Re: ReA to AS, does it go away?
worldofme #283767 11/14/19 03:45 PM
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I'm not sure I would rely on the studies reporting a decreased life expectancy for AS suffererers given that there are no long-term studies on the impact of biologic therapy on disease prognosis. Many of the extant studies will include participants who suffered with the disease for decades before there was any effective treatment.That said, the increased mortality seems to be tied to the cardiovascular complications of AS. I have said repeatedly here that anyone diagnosed with AS needs to see a cardiologist regularly. That relationship should be almost as important as your relationship with your rheumatologist.

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