Katherine, -I had taken Humira for 5 months total and on month 3, I started getting a strange tingly feeling in one foot that wasnt going away no matter what kind of shoe inserts I tried or stretches I did. . Since I wasn't getting any relief from Humira (same as with Taltz which I took for a year), I quit taking it. At that point, I thought it was a flare on the bottom of that foot pressing on a nerve. (sounded reasonable to me). The tingling in my foot never stopped and then 2 months after I quite Humira, my other foot started tingling as well. From there, both feet got worse, tingling, burning and feeling numb and sometimes it creeps up the side of my legs. I cant sleep at night because of the pain. I cant walk without a lot of pain and I will lose my balance easily. In February, I saw a neurologist who conducted a EMG and it is NOT my back or spine. I did a lot of bloodwork including a glucose tolerance test and all came back negative. I was subsequently diagnosed with Small Fiber Nephropathy most likely as a side effect from Humira. He showed me that it is a rare side effect of Humira. I can chose to do a biopsy of my feet next but the treatment will be the same no matter what it shows. I was given Gabapenten which helps with the pain and I can sleep with it now. I am very troubled and sad with this because the one thing I enjoyed most was walking my 3 dogs and I cant do that anymore. I am sure my dogs are sad too!
Cipher - did the biopsy hurt? If the biopsy is negative for demyelination, are CIPD, or Mononeuritis Multiplex the only two diagnosis it could be? I was wondering if I should have an MRI on my brain next? I feel stuck.
Dadcue- what did your MRI show? are you OK?
Last edited by CB in CA; 08/08/20 07:11 AM.
