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Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284385 07/30/20 09:02 PM
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Could be interesting for you to watch this video on the long term symptoms reality of covid

https://youtu.be/s_fSz3y022o


Last edited by achala; 07/30/20 09:03 PM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284452 09/24/20 05:39 PM
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More promising information related to use of TNF-a inhibitors to treat COVID-19 from The Lancet: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(20)30309-X/fulltext

Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284462 09/26/20 07:29 PM
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In February of this year, I took a flu shot with H1N1-2009 novel pathogen in it, and 2 days later I was at the ER ad was admitted on the spot due to sepsis and I nearly died. I think I had one of those cytoskine storms. I had lactic acidocious and my BNP (brain natriuretic peptide) level was so high (549) it indicated heart failure. My fever was 103.7, BP was 85/40, and heart rate was 150 at rest. Initially they didn't know what I had, but on the third night in the hospital, the test indicated I had H1N1-2009 novel flu. Supposedly we cannot get that from a flu shot, but I had been only out of the house once in 30 days around the time of that infection, and it was to go to the pharmacy to get a flu shot. This all happened in February 2020 as the COVID-19 virus (SARS-2-COVID19) was just arriving at the United States. Its now September and I'm still on oxygen at home due to all the damage the virus did to my lungs, but I'm slowly improving and may not need the oxygen forever. Given I nearly died from a simple H1N1 infection which I had some immunity to because previous year flu shots since 2009 had killed H1N1 novel 2009 as one of the annual strains on most years, so I assume if I get COVID-19 in my shape, I am probably going to die. Therefore, I have both N95 masks and P100 masks and face shields and I take all precautions when I leave the home, because I'm 56 years old with my son in his first year of medical school on the way to become an orthopedic surgeon (or so he plans).

Last edited by Jeffn; 09/26/20 07:34 PM.

Dx w/ AS in 1985. HLA-B27+. Left total hip replacement in 1998, lost 2" of height due to osteoporosis. Relevant meds include Remicade, Oxycontin, Percocet, Lyrica, Soma.7 hour spine fusion surgery for cervical spondylotic myelopathy and radiculopathy but have residual myelopathy. I have generalized osteoarthritis and have worn out hips, knees, big toes, and some fingers are fused or growing bones. Disabled since 2015. Chronic pain patient on a high dose of opioids. Live in zero gravity chair.
Re: Coronavirus and Spondyloarthritis: Your Questions,
Jeffn #284467 09/28/20 03:07 AM
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Originally Posted by Jeffn
In February of this year, I took a flu shot with H1N1-2009 novel pathogen in it, and 2 days later I was at the ER ad was admitted on the spot due to sepsis and I nearly died. I think I had one of those cytoskine storms. I had lactic acidocious and my BNP (brain natriuretic peptide) level was so high (549) it indicated heart failure. My fever was 103.7, BP was 85/40, and heart rate was 150 at rest. Initially they didn't know what I had, but on the third night in the hospital, the test indicated I had H1N1-2009 novel flu. Supposedly we cannot get that from a flu shot, but I had been only out of the house once in 30 days around the time of that infection, and it was to go to the pharmacy to get a flu shot. This all happened in February 2020 as the COVID-19 virus (SARS-2-COVID19) was just arriving at the United States. Its now September and I'm still on oxygen at home due to all the damage the virus did to my lungs, but I'm slowly improving and may not need the oxygen forever. Given I nearly died from a simple H1N1 infection which I had some immunity to because previous year flu shots since 2009 had killed H1N1 novel 2009 as one of the annual strains on most years, so I assume if I get COVID-19 in my shape, I am probably going to die. Therefore, I have both N95 masks and P100 masks and face shields and I take all precautions when I leave the home, because I'm 56 years old with my son in his first year of medical school on the way to become an orthopedic surgeon (or so he plans).


That is terrible to hear. Good that you made it and are almost out of the woods. Nurses and doctors are never supposed to give live viruses to patients with immunosuppressive medication.


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284469 10/01/20 01:40 AM
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Oxford University is going to test Humira as a treatment to COVID-19:

https://news.yahoo.com/oxford-study...ge6mivdVl8QD09YQ04Bko7sAxOY58gVws2h-vipQ


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284492 11/01/20 06:38 AM
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Seems my wife got it.test coming back tomorrow. The symptoms are vomiting, fever, muscles aches, dizziness. Either she is first or I already had it last week, what I attributed to be muscle fever after first time jogging in 3 years. But what a muscle fever that was! The first night the pain in my legs was so severe that I had to give in with the whole of myself to it if I wanted to get at least couple of hours sleep. The eyeballs were also hurting me like crazy so I thought uveitis was back but it wasn’t just dry eyes. The pain in legs muscles lasted for 5 days and became stronger at night almost unbearable. I don’t know if this was it and now my wife battles with it in her way or i just had muscles fever and that bastard coming for me next. The weird part of it now I am stuck with my 13 old niece in quarantine since we had her over the weekend before my wife developed symptoms. If test happen to be positive it will be a very long 2 weeks for me working from the room with hyper active niece beside me. Jolly times!

Last edited by achala; 11/01/20 06:39 AM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284493 11/02/20 06:41 PM
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little update (please let me know if not appreciated),
my wife`s test came back positive on Sunday and she really had hard times for the past 3 days with today finally temperature dropping but developed slight chest pain while coughing.
As for me, the AS people, I lost a sense of taste & smell (along with stuffed nose but not running, it is like a little burning there very dry) and literally I cannot smell Coffee nor taste dried cloves. Apart from that and the pervious weeks muscles aches + occasional cough (1 time per hour) thats pretty much all for the moment.
I don`t take any meds for AS since 1 year.

Last edited by achala; 11/02/20 06:43 PM.

diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Coronavirus and Spondyloarthritis: Your Questions,
achala #284495 11/04/20 08:51 PM
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Hey Achala, Please take good care of yourself. Am upset to hear what you guys are going through. Please keep us posted as to how you guys pull through. Are ya'll taking anything for symptoms or to treat it?
Danielle


25 years a pharmacist HLAB27+(thanks dad!)iritis at 17, plantar fasciitis at 22, sacroiliitis at 25,first image at 31,diagnosis of AS at 48(hello medical community!!) it's all been downhill since Taltz, Celebrex,Trazodone,Tramadol,benztropine(antispasmodic), high Omega3,A&D to tame immune system,quercetin,bromelain) previous meds were Enbrel Humira Simponi, biggest issues are subacromial bursitis and weight gain on biologics. As of Nov 2021 seropositive RA
Re: Coronavirus and Spondyloarthritis: Your Questions,
theyoungestmuse #284496 11/06/20 07:15 AM
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Hello Danielle, thank you for the kind words. It seems we pulled it trough. My wife still on antibiotics but already working from home. For me I was taking tons of D3, zinc & others and seems i was mostly asymptomatic, of course beside the loss of smell and muscles aches. Of course I don’t know what’s going on beneath that inside my body but it is relieving to see AS did not restart. Another 8 days of quarantine and we will take the tests. After that 1 in the bag wink


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Coronavirus and Spondyloarthritis: Your Questions,
PsSpa_M_1989 #284500 11/18/20 06:37 PM
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Originally Posted by PsSpa_M_1989
Oxford University is going to test Humira as a treatment to COVID-19:

https://news.yahoo.com/oxford-study...ge6mivdVl8QD09YQ04Bko7sAxOY58gVws2h-vipQ
[quote=PsSpa_M_1989]Oxford University is going to test Humira as a treatment to COVID-19:

I almost choked when I read this. I think it’s great and I need more because I’m getting worse. However, when I saw my pcp in September, I also found I need more cancer screenings due to my use. It’s sobering in that my health is tanking a bit and getting older is kind of stinking.

Oh well...onward and upward
Elaine


But hope still breathes and truth is always true.
And just when we think it’s almost over
Love has the final move
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