Spondylitis Association of America Forums General Discussion General Message Board for Ankylosing Spondylitis and Related Diseases Spondylitis Symptoms - List Your Symptoms

Hi,
throbbing hip pain (used to keep me up at night before meds kicked in)
wrist pain
tendonitis
plantar faschiitis (better now with cortesone shots)
sharp stabbing pain from wrist (carpal tunnel??)
upper back pain & pinched nerves
lower back pain, sciatica with pain wrapping around the hip & down onto thigh
shoulder pain (especially in colder weather or when wind or AC blows on me)
tailbone pain when standing up & sitting down (what the heck is that!)
pain below the kneecap (feels like tendonitis)
thumb joint pain both hands
stiffness after sitting awhile
Diagnosed with USpA
Hoping to learn more about this.

Not officially diagnosed.....but

Severe Sciatica and what was diagnosed as "hamstring pull" in my mid 20's. I could barely walk.

Inexplicable rashes throughout my mid 20's to mid 30's. Several different diagnoses for these.

Fatigue and depression mid 20's to now age 39.

Ankle swelled to the size of a nerf football at age 33. I was told I had torn my posterior tibial tendon and we needed to operate. I didn't agree as there hadn't been any trauma.

2 bouts of iritis.

Big toe swelled to the size of an orange a year ago.

Bad neck pain and night sweats recently. Also, I was told that I have a pretty significant curvature of the spine. Can this be brought on by AS?

Thanks.

PS
Anyone know a good DR. in the Richmond, VA area?

Hi, I have been at this site for a while now, but have never managed to list all my symptoms, but I will TRY.....here goes:

Tall and lanky as a kid, with hypermobile joints

Now I have lost two inches in height at age 41, and have hypemobility syndrome.

Neck had it's first episode at age 13, it suddenly debilitated me. Was home alone and no one believed when I said "I cant go to school, I can't move!"

I had multi level nerve root impingement from osteophytes, and cervical stenosis, severe cervical spondylosis by age 39 and last year had 3 levels of neck fused.

Thoracic outlet syndrome, vascular and neuro types, bilaterally

raynauds disease since age 19

elevated leukocytes

partial fusion of L5-sacrum on right side

DDD
spondylosis lumbar

Sacroilitis

trochanter bursitis
Hip pain
hip stiffness
SI joint right side very painful to touch when inflamed
STIFF LOW back and ankles, heels

rotator cuff tendonitis in both shoulders

SIT BONE PAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

knee pain an stiffness
migraines- severe
muscle spasms- regularly
NERVE PAIN.....LEGS< FEET< ARMS< HANDS< NECK< BACK BUTT
GERD
REFLUX
BOWEL ISSUES
FATIGUE
WEAKNESS
DEPRESSION
ANXIETY
mouth sores
chest pain!!
Pain, pain pain.................:(

So far diagnoses are fibromyalgia, osteoarthritis, DDD, spondylosis, thoracic outlet syndrome, sciatica, dyslipidemia, sacroilitis, rotator cuff, trochanter bursitis, congenital degenerative arthritis of the lumbar spine, neuropathies, migrianes, GERD, reflux, ulcers, cervical polyp, MRSA, respiratory staph, hypermobility syndrome, osteopenia of cervical spine, DDD, ........on and on!!

I'm brand new to this forum and would like to share some of my symptoms.

* fatique
* pain and weakness in left wrist, elbow, shoulder
* unable to sleep in my bed (bones feel like their being crushed)I sleep in a recliner and it's getting old fast!
* loss of appetite
* more pronounced pain in the evening prior to bedtime
* pain when I breathe
* pain in back, knees, shoulders, ankles and wrists
* left wrist is nearly as wide as my left hand

I'm on a regimen of methotrexate - self injection (8 ml) once a week along with a vitamin D pill. Tomorrow (July 3rd) will be "shot" #9 and I'm not feeling any better. In fact, it started out, days one and two preceeding the shot were bad, but the rest of the week was good. Now I'm lucky if I have two to three good days a week. New as of last week, I'm having pain above my left eye and getting weekly headaches. My specialist tells me it will take nearly 12 shots before I will feel better.

Anyone else have experience with methotrexate and if so, how long before you felt some relief?

Thank you,
Kathleen

HEY GUYS

THIS IS MY FIRST POST NEWLY DIAG JUST THURSDAY (7-3-08)

TELL ME WHAT TO EXPECT PLEASE.

I have had symptoms for 7 years, was diagnosed with AS three years ago, and started Embrel 2 years ago. Symptoms are usually pretty well managed by weekly injection of Embrel and 2-3x daily Voltarin.

Symptoms are:

lower lumbar and hip pain and stiffness
knee pain
frozen shoulders
neck tension and migraine
sciatica
numbness and pins and needles in right front thigh when tired
TMJ
history of plantar fasciatis

I was diagnosed at age 17, I am now 35

I have alot of the classic symtems:

Back pain
fatigue
stiffness
Every couple years Iritis
Bowel issues. (going back to doc to have diagnosed
w/ bowel issues I have passed out a couple times. (not sure what this is about)

* Low back pain very severe sometimes but aches all the time
* Pain in buttock/low back SI joint
* At times pain so severe I cant walk
* Knee pain and pain going down legs
* Occasional eye issues, enlarged pupil, bloodshot, swelling
* Migranes
* Muscle stiffness and sometimes weakness
* Pain almost always worse in the AM especially in lower back
* Fatigue and trouble sleeping
* Pain in neck so bad when i get attacks it doesn't go away for weeks and gives me horrible migranes
* Pain in back gets worse when its rainy out (as strange as that seems).
* Rhuemy told me my back is more hunched than what is normal.

I am knew to this..
stiff in am
extremely stiff in pm
depressed
tired
can't sleep
alot of pain right si jt
hip pain
low back pain and tightness
did have right buttock pain.but all the drugs have seemed to help this
don't feel the same person I used to be

1)rib pain, excruciating to sneeze. When sleeping on my side and then turning back, it feels like my ribs are decompressing and hurts horribly.

2)Stiffness and pain throughout my muscles.

3)malaise and mildly flu-like.

4)I have Crohns which is related to the Spondylitis.

5)Every 3-6 months I get excruciating hip pain so that I can not walk.

6)Some days I feel like I can only walk like a 90 year old, I feel like my steps are tentative and shaky.

CAN ANYONE SUGGEST TREATMENT? NSAIDS ARE OFF LIMITS DUE TO THE CROHNS. I AM MISERABLE.