It is so good to hear the Provigil is working! ...I am the one that had the crazy reacation to it.
I asked about CFS because my Rheumy has mulled it around alot recently. I have been undergoing a battery of tests, pulmonary, sleep, neurological, etc. I have been in a severe flare up since the summer (diagnosed w/AS many years ago), things have never been this bad and have been really, really progressing.
I am waiting on some of the test results to be read by the proper specialists, but the rheumy said to do some research on my own about CFS as well...he and I both prefer the tag team approach to figuring out what is going on so I am well informed and have any questions answered when I visit him.
Due to the fatigue, he just extended by 2.5 month disability by at least another 90 days. It is far worse than my joint pain right now.
We are also waiting to see if I have narcolepsy...FUN!
Thanks for the replies on CFS, it is really nice to hear from others in this situation. The AS fatigue is overwhelming, much less adding another illness on top.