Your post was attached to another one and might get missed, so I am writing this for you to post your own,
I hope you find a good doctor and a research hospital might be good. They aren't going by the old news (only men get it) and are up on everything.
Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.