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I was thinking, it might be fun to ,,,
#140268 04/18/09 03:22 AM
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... put together a list of all the ways that AS "inconveniences" us, and how we adapt and manage to get around those "inconveniences". We talk so much about the symptoms, perhaps it would help people get a handle on how this disease affects us, if they could see a list of ways it affects us every day of our lives.

Give me all the examples you can think of, and I will put them all together and find a place for the list on the Spondyville website. For example, a woman on the Spondyville message board mentioned having a hard time reaching to shave under your arms, I have trouble getting in and out of some cars, and have trouble reaching items on store shelve of a certain height,

In what specific ways does AS "inconvenience" you? AND, how do you adapt and manage to get around the "inconvenience"?


Spenser23


Re: I was thinking, it might be fun to ,,,
Spenser23 #140269 04/18/09 03:40 AM
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This is a great idea. Here's a few:
-I love gardening but it is more difficult with back and hand problems. I use a garden stool which flips so that I can kneel or sit. It also has handles on the sides so that it is easier to get up. I also use ergonomic gardening tools for my hands.
Barb

Re: I was thinking, it might be fun to ,,,
Spenser23 #140271 04/18/09 03:46 AM
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Spencer, just a quick suggestion - several of your later posts have been in either yellow or another lighter colored font. These have been very hard to read. I've overcome that problem by highlighting your post and reading the white letters against the blue highlight.

So is anyone else out there having this problem or is it just my poor tired eyes?


Now back to your suggestion of listing how AS inconveniences us. Ok, you asked for it, here goes:

1. Hard to get in and out of automobiles
2. Putting on shoes and socks becoming increasingly difficult.
3. Looking to the left for oncoming traffic requires shifting my body.
4. Hard to plan a family outing, since I never know how bad my feet (or other body parts) may hurt at any particular time.
5. I avoid any place where I may have to stand in line for any length of time. Missed out on several tickets to events because of this.

These are but just a few, I'm sure many others will add to these.

Ann


Ann
HLAB27+
62 years old flexeril, tramadol, tramadol er, percocet, lidoderm patch, flector patch, voltaren gel + other meds for other conditions + lots of vitamins

Re: I was thinking, it might be fun to ,,,
aslee9 #140274 04/18/09 07:59 AM
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yes - the yellow writing against light background was hard to read

putting shoes on
cutting toenails
picking small things up off the floor
getting things from the bottom shelf or bottom draw, bottom of the fridge or freezer etc. - anything very low

Re: I was thinking, it might be fun to ,,,
aslee9 #140282 04/18/09 09:57 AM
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Originally Posted By: aslee9
I've overcome that problem by highlighting your post and reading the white letters against the blue highlight.


Ann, very clever solution! I missed out on reading one of Spenser's posts because of the font color, too, but didn't think of your highlighting method. Thanks for sharing!

Brenda

Last edited by poodlegirl; 04/18/09 09:57 AM.

Brenda

undifferentiated spondyloarthropy, HLA-B27+, iritis, Vit D3: 6000 IU/day, trochanter bursitis, Joint Hypermobility Syndrome, migraines, SI joint dysfunction/hypermobility, DDD L4/L5 and L3/L4, straightening of cervical spine, impaired glucose tolerance, sleep apnea.
Re: I was thinking, it might be fun to ,,,
poodlegirl #140284 04/18/09 12:33 PM
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Lovely post, I'll add more later but here is a just discovered one, girly.

Because of rib pain, hard to wear boulder holders, not such a problem in the winter but summer I didn't want to leave the house. I now wear very stylish two layering contrasting color t-shirts. Does the job painlessly while helping me spruce up.

Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: I was thinking, it might be fun to ,,,
Banana #140285 04/18/09 01:10 PM
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Sorry about the color problem. I thought it was only the lighter shades of yellow you were referring to. By the way, do you know that you can adjust the message board so that the background is dark, (sort of what you did Ann, with highlighting.) You can make that the default look by going to the top of the page, clicking on "My Stuff" and the "Preferences". One of the categories is, "Stylesheet" and you can change it from normal to dark. That feature is what I use as it shows greater contrast between the letters and the background.

Does this Blue color work better?

Spenser23


Re: I was thinking, it might be fun to ,,,
Spenser23 #140315 04/18/09 03:54 PM
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Sitting in my chair at work can be a problem sometimes. Either I get up to stretch or practice better posture.

The arthritis in my left foot is so awful that sometimes it will "give" out when I walk...I clutch something in pain. Sometimes I need Vicodin to dim the pain down so I can sleep. I also wear cross trainers much of the year or Teva's in the warmer months. I really miss wearing good shoes. frown

Fatigue knocks me down. I hate that part too.

Elaine


But hope still breathes and truth is always true.
And just when we think it’s almost over
Love has the final move
Re: I was thinking, it might be fun to ,,,
winelover #140321 04/18/09 08:20 PM
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Originally Posted By: winelover

cutting toenails


To me, this isn't an inconvenience...just my excuse to get a monthly pedicure! wink (as if I needed an excuse!)

Re: I was thinking, it might be fun to ,,,
lanabanana #140334 04/18/09 10:39 PM
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Let's see...I have to take a nap every day when my toddlers do, just to have enough energy to follow them around for the rest of the day.

Shaving my legs is next to impossible. Seriously...I can't shave my legs anymore it is like I am 9 months pregnant.(TMI)

My hands hurt so bad it hurts to hold onto a toothbrush for a full two minutes twice a day to effectively brush my teeth. That also goes for typing...it hurts too.

Putting anything over my feet is difficult.

Housecleaning....The hardest things are:
Bending over to empty front loading washed/wet clothes into basket to put into dryer....Then bending over to put the dried clothes into basket to carry to table to fold...repeat process.

Vacuuming/sweeping/mopping/toilet cleaning....all involving the lower back to be strong...which mine is not. I need a housekeeper...can someone tell my husband. I will get back to you when I come up with more. Of course there are things that are very specific to being a mother that I can't do very easily...like bathing them..slippery toddlers are very hard to hold on to if you are not handicapped!

BTW, Spenser...the yellow writing is hard to read no matter what shade...and YES, the blue is much better...thanks...so I am one that has a hard time seeing light colors on light colors...LOL


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