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Re: Feeling alone.....
Prana_Ferox #160801 11/03/09 11:22 PM
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I have had flares where I run fevers and feel generally sick. Most of the time I run low grade fevers but have also had flares (at least what I now know were flares) where I ran pretty high fevers. Since I started having symptoms in childhood (I am now 35, diagnosed at 33), I have a long history of fevers and flu like illness in addition to joint inflammation. I have heard it is all connected.

Laura

Re: Feeling alone.....
MomtoRhi #160812 11/04/09 03:07 AM
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Ashiegirl -

It does sound like your medication is not working as well as it could.

I get a bad flare (feels like flu, flu skin, low-grade fever, just yucky all over) every 2-3 months. I think this is pretty often.

It is critical that you get enough rest (8-10 hours a day), eat right and don't overdo it.

I know this is hard for you at your age, but you can hang out with your friends as long as you give yourself "breaks". They want to go dancing? Go, just don't dance every dance. I used to go with my friends in college. I can't dance (at all), so I just sat out the dances, talked to other people sitting out and usually had a pretty good time.

If you need to leave early, just do it. You can say you have to get your beauty sleep.

It would be good if you can find even one friend to confide in. Sometimes you have to be really specific about what is going on with you for people to understand. This friend could be your "wingman" who can help fend off questions from others and who might even be willing to leave early with you sometimes so you don't feel like the odd person out.

As far as your school work goes, you may need to talk to your professors. Some will be jerks and some will be understanding. You may also need to take fewer hours at a time (12 instead of 15). I bet there is someone in student advising who could help you work this out.

Maybe you could start a facebook group for kids your age who have extraordinary challenges.

I'm sorry this is so hard for you and I hope you keep coming here to let us know how you are doing.

Re: Feeling alone.....
mariposa #160815 11/04/09 09:33 AM
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LOL, I'm sorry, I forget the difference in age limits with drinking - here in the UK you can legally drink age 18. Its 21 in the USA, isn't it?

Good for you for not drinking though. Its definitely the smarter option when you have this illness.

As the others have said, I hope you find the best combo of medicines for you. You might also like to think of mebbes taking a cushion into long lectures with you. I guess everyone will see it, but I can't imagine sitting two hours or so like that. Ow!





37, Female, Psoriatic Spondylitis
www.charliefoulkes.com
Re: Feeling alone.....
Prana_Ferox #160817 11/04/09 12:30 PM
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Hello, my very first post anywhere.. but i understand what your saying.. I was in a wheel chair year 8 high school for a term because i couldn't walk or handle any pressure on my joints it was hard.. I'm now 37 but still remember those nights out on the town watching my friends dance and try to pull my around only to cause chronic pain i tried to hide it from everyone because i wanted to be 'normal'. I find it comes and goes to a point you can manage it as does the depression that seems to follow.. anytime you need to chat let me know i'd be happy to help if i can.

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