Previous Thread
Next Thread
Print Thread
Page 2 of 6 1 2 3 4 5 6
Re: Welcome to the 20-Something Club
AnJulua #225587 01/18/12 02:11 PM
Joined: Nov 2010
Posts: 2,008
I
Registered Visitor
Offline
Registered Visitor
I
Joined: Nov 2010
Posts: 2,008
Welcome, Angie! Glad you've finally found a doctor who will listen and treat you. It shouldn't have to be so hard. frown

Now that my Humira has kicked in, it deals with my fatigue for me, thankfully. Before it knocked out my fatigue though (as Enbrel hopefully will for you), I made sure to get a full 8 hours of sleep every night, took naps as needed and as able, and gave myself a good long while in the mornings to wake up before going anywhere. It's also good to pace yourself with any sort of strenuous activity, whether that's house-cleaning or physically active work. Take breaks, ask for help as needed, and break things down into smaller tasks.


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Re: Welcome to the 20-Something Club
iviary #225604 01/18/12 07:16 PM
Joined: Jan 2012
Posts: 3
A
Registered Visitor
Offline
Registered Visitor
A
Joined: Jan 2012
Posts: 3
Yesterday I saw my med manager and she suggested nuvigil/provigil to help with my chronic fatigue. I'm not so sure what I should do. Got any experience with those? I'm so lost and so tired I have created a little cave in my room and I have a hard time lea ving my bed. I also work 55 hours a week. I do go to bed at 8pm to wake up st 6am. So I am getting sleep but then I go home from work just to take a 3 hour nap then wake up for dinner, walk the dogs and back to bed.


Angie 29 in Boise
AS- indomethacin, enbrel, klonopin
Re: Welcome to the 20-Something Club
JamesChoi #227770 02/19/12 07:36 PM
Joined: Feb 2012
Posts: 1
K
First time visitor
Offline
First time visitor
K
Joined: Feb 2012
Posts: 1
just found this site, thanks. My 23 yr. old mildly autistic son was diag. almost 1 1/2 yrs, ago. It took almost that long to get that diag. Thank God he has little pain. Most all of his spine is already fused. We are trying chiro. again, also adding swimming (of sorts). Yesterday lab work showed anemia and low vit. D. He takes Baclofin, and advil as needed for pain. He also has chol.,H., B/P, diabetes. Anyone else have these comp.? Hope he will post himself soon. Thanks for the site. KevC's Mom

Re: Welcome to the 20-Something Club
KevC #230874 04/07/12 05:42 AM
Joined: Dec 2008
Posts: 2,183
W
Registered Visitor
Offline
Registered Visitor
W
Joined: Dec 2008
Posts: 2,183
Originally Posted By: KevC
...... Most all of his spine is already fused. We are trying chiro......


chiro may not be the best for someone with fused vertebrae - can someone else comment about this please?
Are you there Spenser? you know about fusion.......

Last edited by winelover; 04/07/12 05:42 AM.
Re: Welcome to the 20-Something Club
winelover #230881 04/07/12 07:51 AM
Joined: Oct 2011
Posts: 971
S
Registered Visitor
Offline
Registered Visitor
S
Joined: Oct 2011
Posts: 971
I'm no expert but I'm sure I've read that chiro can be dangerous for fused spines as the new bone is quite brittle.


Shirley
Peripheral and axial AS diagnosed October 2011 aged 50, more than 15 years after the symptoms started. Also PCOS, GERD/oesophagitis/dysphagia, IBS, asthma,chronic rhinitis. Taking enbrel, methotrexate, folic acid, omeprazole, vitamin D, metformin, steroid inhaler and eating low starch/low GI.
Re: Welcome to the 20-Something Club
Shirley #231196 04/12/12 10:50 PM
S
sequoia
Unregistered
sequoia
Unregistered
S
no chiros for fused. please see your rheumatologist new for appropriate treatment. also, low vit d needs to be addressed. many here take prescription strength.

come on over to the main forum for general information.

welcome all, prayers and peace, sequoia

Re: Welcome to the 20-Something Club
spondylitis025 #232864 05/07/12 05:58 PM
Joined: May 2012
Posts: 4
S
Registered Visitor
Offline
Registered Visitor
S
Joined: May 2012
Posts: 4
Can A Person Havin Spondylitis ankylosing for over 40 years be cured..??

Re: Welcome to the 20-Something Club
Saurav #232901 05/08/12 12:36 AM
Joined: Nov 2010
Posts: 2,008
I
Registered Visitor
Offline
Registered Visitor
I
Joined: Nov 2010
Posts: 2,008
Saurav, you might experience remission, but there is no currently known cure for AS.


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Re: Welcome to the 20-Something Club
spondylitis025 #232955 05/08/12 06:20 PM
Joined: May 2012
Posts: 12
C
Registered Visitor
Offline
Registered Visitor
C
Joined: May 2012
Posts: 12
having one of them days where nothing in my head works and my body is having the same kinda day frown

grip in hand isnt there which is scarey smirk
everything changes from day to day & i dunno what real any more



Re: Welcome to the 20-Something Club
chloe #232964 05/08/12 07:48 PM
Joined: Nov 2010
Posts: 2,008
I
Registered Visitor
Offline
Registered Visitor
I
Joined: Nov 2010
Posts: 2,008
Sorry Chloe. I know Emmie (another 23-year-old like me) has been having some problems with grip too, though she hasn't been in the forums much lately. It is pretty scary, especially at our age. I hope that you get a diagnosis soon. At least for me, having a diagnosis made everything feel much more "real", where before I'd been prone to just thinking things were "in my head." That's never a good feeling to have, when something "in your head" hurts so darn much! I was diagnosed at age 21 and my symptoms began around age 17, so from reading your other thread in the main forum, it sounds like we're on a fairly similarly crappy timeline!


Mary, 25, happily married pro photographer, momma to 2 great danes.
Dx: Psoriatic Arthritis, Fibromyalgia, Psoriasis, Sjogren's, IBS, Hiatal Hernia, & possible Endometriosis.
Meds: Stelara, Methotrexate, Relafen, Omeprazole, Lyrica, Tizanidine, Voltaren Gel, Tramadol
Page 2 of 6 1 2 3 4 5 6

Moderated by  ElinAslanyan, RyanMiyamoto 

Link Copied to Clipboard
Powered by UBB.threads™ PHP Forum Software 7.7.4