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Re: HLA-B27 negative
NorthCentralFL #253611 06/11/13 02:21 PM
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I only wish my nails looked as good as the one in the photo on that site about the nail ridges. Here is a photo of my left ring finger. It won't grow any further than this without splitting right down the middle. My nails have always been severely ridged, which is why I think my diagnosing rheumatologist noted it.

Trying to upload the photo...

Re: HLA-B27 negative
JenInCincy #253612 06/11/13 02:22 PM
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Originally Posted By: JenInCincy
So I know he wants to help me, which makes his stubborn refusal to concede I am afflicted by SpA and nothing else all the more hurtful - and personal.

I DO understand the 'personal' comment..hence my harping that people need to be their own advocate because after being told over and over I don't have it, I walked away (and even the one doctor that felt my getting aggravated was a sign I needed to be put on anxiety meds [never filled the prescription after I found out what it was]), but heck yeah, after a while, it gets old hearing it, having the Rad reports (but them refusing to look at them), etc.

If it were a choice and I knew then what I know now, I would have challenged them with the backing I have (now).

I think still, there is a lack of broad knowledge of AS in the medical community and a person versed in it should be the only one able to proclaim or deny it (like I didn't know the sweats or the eyes or the enthesitis, etc. were symptomatic of AS).

Anyway - hugs Jen as I know that is a real bubble blower (and mental set back).

Re: HLA-B27 negative
NorthCentralFL #253613 06/11/13 02:24 PM
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Looks like you have to have a GMail account to see it frown

Re: HLA-B27 negative
NorthCentralFL #253614 06/11/13 02:32 PM
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Trouble with the photo link. frown I'll come back to it later.

Last edited by NorthCentralFL; 06/11/13 02:38 PM. Reason: Having trouble with the link. I will come back to this when I can get it to work.
Re: HLA-B27 negative
NorthCentralFL #253622 06/11/13 04:30 PM
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Re: HLA-B27 negative
NorthCentralFL #253623 06/11/13 04:32 PM
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I did get through and see the photo. It's a little hazy but from that I can tell, it looks like vertical nail ridges which are fairly common. Look at the link and let me know if this is what yours looks like.

http://www.mayoclinic.com/health/medical/IM01720

(thanks for the link who ever posted it smile )

Re: HLA-B27 negative
NorthCentralFL #253624 06/11/13 04:37 PM
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I don't think they look alike at all. Each of the wide white lines on my ring finger nail are raised very high, with the dark lines being deeply indented.

I suppose you'd have to see and feel them in person to understand what I mean. I get comments on them constantly. frown

Re: HLA-B27 negative
NorthCentralFL #253625 06/11/13 04:40 PM
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Re: HLA-B27 negative
NorthCentralFL #253627 06/11/13 04:52 PM
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Oh yes, I have tried many things over the years. I have been told that it is systemic. When it comes to a healthy diet and proper nutrients, I've been all about that, since I realized a long time ago that it is one of the best ways to manage my AS.

Here is another odd feature of my systemic disorder. I had a tremendous amount of extra bone growth throughout my body during my most severe flare period at age 30. I used to have a cute gap between my top two front teeth, which closed due to all of the bone growth just above and to each side of them. This is a stock photo, NOT me. smile

http://www.istockphoto.com/stock-photo-11670592-buccal-exostosis.php

Then, in 2009, I had a CT scan of my chest and learned that I have a lot of new bone growth bilaterally off of my first ribs.

It's all just pure weirdness. Not much surprises me anymore.

Re: HLA-B27 negative
NorthCentralFL #253630 06/11/13 05:02 PM
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Agreed that nothing is surprising anymore.....lol

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