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Re: Spondyville's Octoberblest!
Spenser23 #259194 10/09/13 01:52 AM
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Ok, so I'm 8 days late to this party, but I'll pop in with a few when I can :-)

I am so blessed to have a family who love me.

I am so blessed to have a place to live.

I am blessed (in my opinion) with a wicked sense of humor to deal with this screwy disease.

Oh, and I am very blessed (and grateful) that coffee is available over the counter :-)


Kim: finishing the PhD SOMETIME in 2013! Dx'd with Undifferentiated Spondyloropathy (officially!) in October 2010 and gastroperesis in August 2011, now adding Sjorgren's and VERTIGO to the mix. Mom to 1 daughter with AS (on FULL disability), and 2 sons with UDiff (1 a graphic designer-freelance and 1 an elite level soccer player). Taking Enbrel (Oct. 2012) and Sulfasalezine (spring? 2011)
Re: Spondyville's Octoberblest!
Soccerdocmom #259225 10/09/13 03:06 PM
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I am also late, but grateful every day for so many things. Besides the usual friends, family, faith....

I am grateful for the sunshine I feel on my face, the wind at my back gently prodding my on, and the crunch of fall leaves under my feet.
I am grateful to have been able to leave my position at work to focus on my studies, family, and readings.
I am grateful that some days my biggest decision is how I can volunteer my newly found free time.
I am grateful that others see me volunteering even though they know my pain and suffering, not for praise and recognition, but to see that you can always do more than you think you can, sometimes with much less than you had, to help others that are less lucky than you are.

God bless all of you



Iritis/uveitis
GERD
Ankylosing Spondylitis
Condochondritis
Skin Rash
Arthritis in distal appendages
Enthesitis
Gastroparesis

Meds-
Remicade infusions
Tramodol
Hydorcodone
Cyclobenzaprine
Re: Spondyville's Octoberblest!
Spenser23 #259227 10/09/13 03:33 PM
Joined: Mar 2013
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I am blessed to have two kitties (both 15 years old!) that are a great comfort to me. They can sense when I am upset or hurting or sick and will sit with/on/beside me.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Spondyville's Octoberblest!
Spenser23 #259243 10/10/13 01:28 AM
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I'm very blessed.

I live in Canada and have health care.

I have disability coverage and can still work part time.

I have a drug plan.

I have an amazing family - a husband I'm crazy over, wonderful kids, lovely parents.

I have enough food, clothing, and a roof over my head.

I am learning to live with my AS, not just manage it.

I seem to be responding to Enbrel. Yay!

The apple tree gave us a good harvest this year.

I'm very lucky, even in the face of all these really sucky challenges smile


"Life is like a game of cards. The hand that is dealt you represents determinism; the way you play it is free will."
Nehru, Jawaharlal
Re: Spondyville's Octoberblest!
Spenser23 #259244 10/10/13 01:50 AM
Joined: Oct 2012
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With a few adaptations I have been able to live a fairly normal life.

I have a wonderful husband. We have just celebrated 26yrs.

I have two wonderful children.

I have four of the sweetest grandchildren you could imagine.

My extended family on both sides is loving and fun with no arguments or drama that seems to plague many families.

We have military health insurance, which is very affordable compared to what others are paying.

So far I don't think that I have any fusing.



Age 61. AS dx'd at age 57
HLA-B27+,iritis/uveitis periodically since 1970, diabetic
Meds. naproxen and muscle relaxer(as needed)
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