Hey all, newbie here from the U.K.
I think Iâ€™ve got AS. For the past ten years, Iâ€™ve had sporadic issues with my back, but it was never really enough to worry about. I did get checked out with a blood test and X-ray ten years ago after lots of stiffness in my back and fatigue, all the usual AS signs (my brother was diagnosed at 19, so I knew a bit about it). All came back fine at that time. The most worrying symptom for me was that sometimes, out of the blue, I would just get this astonishing pain in my tailbone, which would start as a dull ache, then radiate out into my backside until it got to a level 10 pain and I almost always passed out. It happens after sex a lot. If I orgasm strongly, it can set it off. Anybody else had that? It usually only lasts about half an hour/until I faint.
But over the years, it didnâ€™t happen often, so I just kinda forgot about it.
In the past month, Iâ€™ve been in a flare of some kind. My back, hips, neck have all been screaming at me in some way 24/7. For three weeks the pain was never less than a 7 (Mankoski Scale) and mostly higher. The morning stiffness, which has never really gone away in ten years, has been horrendous. The fatigue is something else!
Iâ€™ve been to the docs, blood test does show some inflammation. X-ray booked for this Friday.
The last couple of days it has eased off a lot, but it seems to have left me with digestive trouble too.
Anyway, nice to meet you all. Let me know if anyone else has the tailbone thing. Itâ€™s weird, and Iâ€™ve never heard of anyone having that kind of thing.