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 Re: Question to those who switched biologics
[Re: SouthernMoss]
#280986
08/10/18 04:47 PM
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Joined: May 2018
Posts: 140
DadCue
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If you only want to quote part of someone's post, use the Quote button, then delete the text you don't want to include in the quote. Just make sure to leave the stuff in brackets at the beginning and end of the quote. How's that?
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Re: Question to those who switched biologics
[Re: seymour]
#280987
08/10/18 04:57 PM
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Joined: Mar 2013
Posts: 2,169
SouthernMoss
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Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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Re: Question to those who switched biologics
[Re: SouthernMoss]
#280989
08/10/18 05:03 PM
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Joined: May 2018
Posts: 140
DadCue
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Re: Question to those who switched biologics
[Re: seymour]
#280990
08/10/18 05:12 PM
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Joined: Jun 2012
Posts: 674
seymour
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I’m glad we did. 😉
While we’re all here, may I ask how long a flare can last? Can it be neverending?
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Re: Question to those who switched biologics
[Re: seymour]
#280992
08/10/18 05:17 PM
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Joined: Mar 2013
Posts: 2,169
SouthernMoss
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If it's never ending, then it's not really a flare. Flares can last for several months, though.
Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
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Re: Question to those who switched biologics
[Re: seymour]
#280996
08/10/18 07:23 PM
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Joined: Jun 2012
Posts: 674
seymour
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Mine’s been going on for like three months with maybe a 3-week break in the middle.
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Re: Question to those who switched biologics
[Re: seymour]
#281054
08/17/18 01:49 PM
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Joined: Jun 2012
Posts: 674
seymour
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I walked 7km yesterday at brisk pace and today I'm kinda sore.
Is this normal? I normally don't exercise much so I guess it might be normal.
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Re: Question to those who switched biologics
[Re: seymour]
#281056
08/17/18 04:46 PM
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Joined: Jun 2016
Posts: 550
Winston
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Yes, normal to be sore after exercise if you haven't exercised in a while.
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Re: Question to those who switched biologics
[Re: seymour]
#281066
08/18/18 03:15 AM
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Joined: Jul 2015
Posts: 45
Eleven11
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Seymour,
My last major flare (it was awful, lasted months and left me with permanent damage) coincided with some bad life circumstances during which I was VERY sedentary. I suspect (can't prove obviously) that being sedentary was a major factor causing or contributing to the flare. Stress probably didn't help either, but that's beside the point I want to make.
Ever since then I try to walk for at least 20 minutes at a brisk pace every day. For some period of time I tried walking 2-3 miles per day, but it didn't seem to make any difference. I suspect, at least for me, that just keeping some level of activity every day helps keep me out of pain.
Just thought I would mention that in case you have been sedentary (because you mentioned depression and that can often keep us inside and sedentary).
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Re: Question to those who switched biologics
[Re: seymour]
#281070
08/18/18 05:12 PM
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Joined: Jun 2012
Posts: 674
seymour
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Hi Eleven11,
I don't want to bother everyone with all the details of my situation again but I wasn't particularly sedentary when my flare started. I had been however pretty anxious for a few months before and I had made major changes to my diet and lost 20 pounds in 4 weeks or so. I don't know if that could be brutal enough to trigger a flare.
In short:
Mid-May to Mid-June: flaring, about 7/10 pain level
Mid-June to Mid-July: flare calmed down to a manageable 3/10 pain
Rest of July to second week of August: flare went back up again to about 6.5/10 pain
Mid-August to now: flare went back down to about 4/10, manageable
I had blood work done at the end of June and everything was perfect (I'm usually high CRP when flaring). My range of motion tests all came back great so that's it for me. Waiting for an MRI appointment that takes forever. For the time being I'm just enduring my flare.
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