I am not sure how much better a group of sick people can be.
Truth.
46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.
"You must be the change you wish to see in the world." --Gandhi
Forum participation has dropped significantly over the past few years not just here but on other forums as well. I used to be involved in 2 wood working forums. Both are no longer. I've seen participation drop on motorcycle forums as well. There of course are some exceptions to this. But even on active forums there is a small core group that does most of the posting. 15 years ago this was a very active forum.
Yea. Facebook groups are taking over but the facebook groups lack threads and discussions are easily lost and no real way to look up history so the same things are discussed over and over.
I don't post a lot anymore but I used to love the discussions and arguments on this board
I too was wondering why it seems so quiet We used to have a lot more posting going on here when I was a regular contributor some years ago. It is a bit tricky to use this forum on a mobile device, as opposed to a computer. I am using an ipad to write this, and the text is teeny tiny! SAA folks, maybe this could be improved please? Let's face it, most internet use now is on an iPhone or equivalent, so the forum needs to be compatible.
Last edited by Rach; 05/24/1912:01 PM.
Rach
"Knowledge is power" - Francis Bacon "Try all things, and hold on to that which is good" - Thomas Jefferson
I am fairly new to the forum, and find it useful especially due to the search function. I can also understand folks not wanting to visit when trying to focus on aspects of life other than illness. I would probably feel differently if I expected support or encouragement from this forum, but I mostly get that from offline places. Social media is the trend these days; as others I have noticed many different forums slowly fading while FB and such are growing.
there was a study in august that found an association between AS and alzheimer's. That is not something that was on my radar and I don't recall seeing any other studies on this.
AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
