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Treatment of fatigue? #282679 02/22/19 06:18 PM
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Sitilydnops Offline OP
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Right now the only medication I'm on is meloxicam. It seems to help with the inflammation but not enough to make any sort of difference. The pain I can live with as I have done for many years. The fatigue however is a drag.

Is there any common treatment for the fatigue, medication or otherwise? I'm well aware of the benefits of exercise but I'm looking for other fatigue treatments.

Re: Treatment of fatigue? [Re: Sitilydnops] #282681 02/22/19 06:34 PM
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The only thing that helped my fatigue was Humira. And even with Humira, if I eat junk food or a high carb meal I will have major fatigue.


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Treatment of fatigue? [Re: Sitilydnops] #282682 02/22/19 07:08 PM
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Winston Offline
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Yeah, same for me. NSAIDs weren't enough to treat my fatigue. It only dissipated when I started Enbrel.

Re: Treatment of fatigue? [Re: Sitilydnops] #282727 03/01/19 06:23 PM
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I am working really hard on no carb diet for a few weeks now and it does seem to be helping, along with going to bed on time. Also taking a hot bath before bed, installed black out curtains, and trying to get better quality sleep. I generally eat low carb but have been so tired lately. Vitamins and exercise help of course. NSAIDs make me more tired. When I first started taking them I would go straight to bed after work. I take tramadol sometimes for fatigue. Doesn’t help with my pain anymore, but when I was on it noticed I couldn’t sleep. If I am having a bad week, I set my alarm an hr early and take two. Generally I wake up ready to go before th hour is up. My pain dr said it is fine for me to do that. Still have an afternoon crash and I don’t like to take too many pills. Seeing a new rheum today so hoping for some ideas from her. Other symptoms are under control. When I switched to weekly humira instead of biweekly I did notice better quality of sleep, but have had some ups and downs since then.

Re: Treatment of fatigue? [Re: Sitilydnops] #282745 03/05/19 06:59 PM
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For fatigue, check out: Low Dose Naltrexone. Naltrexone was approved in the 80's for overdoses. Some pioneering docs came along many years later & now use it in very small doses 4.5 mg & under for many conditions (autoimmune). I have been on it for a year & a half. It did not help my pain as much as I had hoped, but has helped my debilitating fatigue.

It is typically given by a functional medicine doctor or you can go to the following site & find a doc near you: www.ldnscience.org LDN is typically taken at night. It turns off the endorphin production for 3 or 4 hours. This in turn sends the message to the brain that it needs to produce more endorphins. So when the person's endorphins kick in, they are much stronger. As a result, it can help pain, mood and fatigue in addition to many conditions.

SjoDry

Re: Treatment of fatigue? [Re: Sitilydnops] #282753 03/11/19 12:56 AM
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The biologicals are the only thing that helped fatique. That was the first symptom that left when I started Humira. Fatique is a symptom of the disease, it means you are not getting enough treatment.

Anna


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.
Re: Treatment of fatigue? [Re: Sitilydnops] #282754 03/11/19 04:10 PM
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Sitilydnops Offline OP
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I'm trying to avoid biologics as much as possible.

Re: Treatment of fatigue? [Re: Sitilydnops] #282756 03/11/19 04:29 PM
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Winston Offline
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Is there a specific reason why you are trying to avoid biologics as much as possible? Many people who post here have been on biologics for years and can perhaps speak to your concerns.

Re: Treatment of fatigue? [Re: Sitilydnops] #283165 05/31/19 11:01 PM
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mpc2012 Offline
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There are medications that take the fatigue away. I forget the name but they are prescription medications that turn off the fatigue in your brain.

Re: Treatment of fatigue? [Re: Sitilydnops] #283166 05/31/19 11:44 PM
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dan321 Offline
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Anything that gets the inflammation reduced. Most people say NSAIDs, biologics, some swear by the NSD diet. I've also had a bit of success with strong coffee and lots of resting through the day. I'm in the same boat, looking for a solution, and planning to experiment with SNRIs as some are known to boost energy in some people.

Last edited by dan321; 05/31/19 11:44 PM.
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