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Re: Sticky wanted on Diet [Re: Anonymous] #281415 09/17/18 07:33 PM
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achala Offline
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I have been watching today a movie about microbiome. One of the herbalists innit mentioned Reishi mushrooms another wormwood as tnf blocker. Another specialist advocated nutrient dense salt as possible flare remedy. Anyone tried?


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Sticky wanted on Diet [Re: MGS] #281523 09/27/18 07:30 PM
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HI MGS, did you find any useful info on that supplement? There is some info on SAA site regarding supplements. offhand I don't recall that one. this is outside my area. https://www.spondylitis.org/About-S...ation/Diet-Nutrition/Dietary-Supplements


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: Sticky wanted on Diet [Re: Anonymous] #281545 09/29/18 05:30 PM
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Bought the reishi mushrooms supplement last week.
I read that spondylitis association recommendation for supplements. Funny thing when I informed my rheumatologist I am taking supplements she didn’t even ask what kind...


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Sticky wanted on Diet [Re: JenInCincy] #281913 10/30/18 02:28 AM
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Shoulder we still assume inflammation is present even though the common blood markers for inflammation are wnl? This has happened a couple of times with me and in the past couple years. Becomes frustrating when seeing a new MD.


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
Re: Sticky wanted on Diet [Re: Anonymous] #282291 12/28/18 02:42 PM
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I have had AS for over 25 years. I have no fusion... I take Cimzia every 10 days and stick to a hard core gym workout. In addition I stay on the LSD Diet. Right behind working out, diet is the next important thing. If I dont keep off starches no medicine will help. AS is not that bad for me I am in HLBA 27 negative but I do have Polycythemia vera which sucks worse. From looking at me you would have 0 idea I had anything wrong with me.

Exercise
Diet
Meds

Re: Sticky wanted on Diet [Re: Anonymous] #283114 05/22/19 11:13 PM
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I have had a spondyloarthropy for 15-20 years. I also have no fusion. After 1 year of nothing much helping except massages, what helped me a lot (so there was no pain) was acupuncture with electric current applied once every 4-6 weeks. But that did not cure me, and then I moved. After diagnosing what I had a doctor in Switzerland where I was living prescribed Arcoxia. I was worried about constantly taking meds, as that was similar to Vioxx, so perhaps not good for my heart. What HAS rid me of all the symptoms and pain since 2005 has been eating a vegetarian diet. First I fasted for 4 days, which made things worse for a day or two; then I gave up land animal-based meat and some dairy products. It worked! Clearly the bacteria that my body tries to attack (but mistakenly attacks my collagen) proliferate when I eat land animal-based meat and heavy dairy products (cheese and butter in quantity, until recently milk was okay). Shellfish seem to be okay to eat. As time has gone by (I am now 60), I got some pain in my back on occasion again. So I recently have gone nearly vegan (using soy milk and cheese mostly), and that has helped too.

Workouts help me, as does an ibuprofen (recently taking only 1/2 tablet) before bed on most nights.

So my recommendation to one and all is alter your diet! Pain medications and things that address the symptoms only are not getting to the root of the problem, and if you are like me you CAN get to the root of the problem.

Re: Sticky wanted on Diet [Re: wzurcher] #283163 05/31/19 06:52 PM
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Hi wzurcher, I'm glad to read that you are doing well. I'm curious if you have seen a change in blood tests such as CRP or ESR. Thanks,


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: [Sticky] Diet and Ankylosing Spondylitis [Re: Anonymous] #283305 06/29/19 09:09 PM
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Hello all,
I'd like to start a discussion of The Keystone Approach. If you're not familiar with it, it's a book written by Rebecca Fett with a "plan" for healing your microbiome through NS diet and supplements. I had access to The Keystone Approach but not the Sinclair book so I have been following Fett's plan. Have you read it, following it, any thoughts? cool


You only live once but if you do it right, once is enough.
Bye for now ~
Faye
Re: [Sticky] Diet and Ankylosing Spondylitis [Re: FayeK] #283308 06/30/19 04:15 AM
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jtmak Offline
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What does NS stand for?


California, USA
Reoccurring Bilateral Uveitis Dx 1985
Reiters Syndrome Dx 1985
AS Dx 2015
SI joint fused
Re: [Sticky] Diet and Ankylosing Spondylitis [Re: jtmak] #283310 06/30/19 03:16 PM
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Posts: 30
FayeK Offline
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In this case, NS refers to No-Starch. Sorry for any confusion. smile


You only live once but if you do it right, once is enough.
Bye for now ~
Faye
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