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Coronavirus and Spondyloarthritis: Your Questions,
#284097 03/05/20 09:07 PM
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As the coronavirus (COVID-19) virus continues its global spread, many of you in the spondylitis community have reached out with concerns about how it may affect you. The Spondylitis Association of America has spoken with rheumatologists and researchers, and compiled data from trusted medical and news sources in order to create this report, with one goal in mind: to address the specific questions and needs of those with spondyloarthritis (SpA), including ankylosing spondylitis, and related diseases. Scientific understanding of the virus is still evolving, so we will update this report as new information comes to light.

https://www.spondylitis.org/About-S...pondyloarthritis-your-questions-answered

Best Regards,

Kristine Callender, MPH, CHES
Programs Manager
Spondylitis Association of America
To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest.
Direct: 818-465-4298
Office: 818-892-1616 ext. 236
16360 Roscoe Blvd. Ste 100 Van Nuys, CA 91406
Spondylitis.org


Kristine Callender, MPH, CHES

Programs Manager
Forum Administrator
Spondylitis Association of America
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284098 03/05/20 09:46 PM
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That's excellent. Thanks.

Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284099 03/05/20 10:08 PM
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Thank you!


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284100 03/05/20 11:09 PM
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Thanks!

Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284101 03/05/20 11:39 PM
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Good information. Thank you!


Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284104 03/06/20 09:57 AM
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Thank you very much!

Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284113 03/07/20 11:22 PM
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Much needed information from a trusted source. Thank you.

Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284133 03/12/20 08:55 AM
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Here in south Eastern Europe they give covid 19 patients monoclonal antibodies used for Rheumatoid arthritis. They say the inflammatory reaction is to strong


diagnosed with AS April 2018, starting with cervical pain/stiffness; Aug 2018 enthesitis/bursitis left Achilles
diagnosed with AAU Nov 2017 (7 flares so far)
Eosinophilic Gastritis
Sulfasalazine 3g 08.2018-05.2019 (worked for AAU & peripheral)
Supplements:C/D, omega 3/Probiotic/ Mediterranean NSD/curcumin
swimming/yoga/pilates
Predonisone in case of another AAU flare
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284134 03/12/20 11:56 AM
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Here's a link to an article in the journal Nature about all the drugs being evaluated for use against coronavirus: https://www.nature.com/articles/d41587-020-00003-1

TNF-a inhibitors are not on the list, but other drugs used to treat autoimmune disorders like rheumatoid arthritis and lupus are on the list, the anti-malarials in particular.

Note, Nature is making all its coronavirus research available to the public for free right now.

I'm editing this post to include this link to a Washington Post interview: https://www.washingtonpost.com/podc...no-one-knows-why/?p9w22b2p=b2p22p9w00098

The interview is interesting because it explores the question why children aren't being severely impacted by coronavirus. Some researchers think this is key to identifying a treatment. The fact that children aren't as severely impacted suggests two things: (1) it's the immune response to the virus, rather than the virus itself, that is killing people and (2) a lifetime of damage to the lungs makes adults more vulnerable the older they get. As for (1), that explains why immunosuppressant drugs are being investigated as treatments. And that would seem to make our decisions whether to stop taking our meds more complicated. Just my two cents because I'm the kind of nerd intensely interested in these sorts of puzzles.

Last edited by Winston; 03/12/20 04:53 PM. Reason: added something
Re: Coronavirus and Spondyloarthritis: Your Questions,
KristineCallender #284135 03/13/20 06:37 PM
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Hello everyone,

Thank you, Winston, for these information.

If I understand correctly, in the case of the hypothesis 1 (immune response to the virus), the AS people who don't take biologics are more at risk of complications if catching the virus? Our crazy reactive immune system would go absolutely nuts, making us really sick... I have AS but I'm not on biologics (only NSAI). I'm being very careful to avoid all unnecessary contact with people but I can't help being a bit anxious. (I live in France, not far from a cluster...)

Stay safe everyone,

Alice

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