Spondylitis Association of America Forums General Discussion Alternative Treatment / Diet Discussion [Sticky] Diet and Ankylosing Spondylitis

Anyone tried the Everlywell at-home food sensitivity tests or have any idea if AS food response is IgG?

I'm contemplating trying it since being completely off all grains/starches is getting old. Would love to more easily know what foods are reactive.

https://www.everlywell.com/discover...-comprehensive-test/?mrasn=638527.792761

have not tried it. I did do an allergy elimination diet -with a health care provider- years ago and found it informative. There is a food that I was previously unaware of that set off flares for me. Also found things that i suspected which turned out to be fine.

there is also a free study with viome that you may want to check out. https://spondylitis.org/research/participate-in-research/

would love to hear what you find out.

best wishes,

Thanks RAHMBA!
I just signed up to get the eligibility package for the Viome trial. Hopefully I get to do it and get more information - and maybe find more food I can eat :-)

It is so comforting to hear from you - I've never talked to anyone else with AS and having only been officially diagnosed this year I feel pretty alone. All the doctors just want to pile on more meds and more side effects which then want more meds - this site has helped me more than any Dr.
Thanks again.

FWIW: I didn't qualify for the Viome trial, and may look at it again in the future. It is either incredibly fascinating science or an ingenious con to sell supplements -- I haven't decided which way I lean yet. :-) I'd love to see the results, but it looks like the study is still open.

I came onto the forum just now because I got some bloodwork back and I really wanted to tell someone about it, but don't wan't to be preachy and figured the thread about diet was the only place to share this.

About a year ago I was in excruciating pain and could barely walk in the evenings. I got so fed up with it that I started researching possible things to try - which is how I found this forum (THANK YOU ALL). I spent quarantine reading up on and experimenting with diet and supplements. I started with a scorched earth plan and cut out all starches, started taking fish oil, probiotics, turmeric with curcumerin, beet powder. Stopped taking all medications - with Dr support of course (had been on Gilenya for MS). After about 6 months of that I started feeling amazing. I've slowly been adding starches back in and it has been promising.

My C-reactive Protein levels had been at least 30 (should be <8) and my Sed rate at least 24 (should be <20) for several years. In October my CRP was 48.9 . Sed rate was 31. Before diet changes, I could barely touch my shins.

I had an appt with Rheumy last week and I could touch the floor(!). I barely remember the last time I felt pain. CRP is down to 12 (almost normal!) and Sed rate is down to 9 (well within range!).

Like I said - don't want to be preachy or braggy, just wanted to share with *someone* and no one else understands my joy (and pride) in finding something that works for me and helps me be pain free.

Sometimes it's nice to vent good news too :-)