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CoVid 19 Vaccine
#284560 12/18/20 12:18 AM
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I received the 1st of 2 injections yesterday. The 2nd comes in about 3 weeks. I had just a sore arm at the injection site. I have heard that the 2nd injection can produce fever, chills and aches.

I am so happy to share this news. With conscious gratitude to the thousands of people who worked so hard to get it ready for us and recognition of the sadness of those who did not survive this deadly virus....

It's a rough world.

This vaccine is a win.


Diagnosed 2001 after years of joint pain. Remicade started 2002 - 5mg/kg every 7 weeks.
Right Eye Iritis.Trabeculectomy/lens replacement 2006 > DSEK Cornea Transplant 2009.
>Ahmed Shunt 2016 >DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. Radio Frequency Ablation 2008.
Angina and stent placement 9/2020

ICU RN - Seattle, WA
~Grasp The Challenge and Succeed~
Re: CoVid 19 Vaccine
WhiteCell #284561 12/18/20 04:04 AM
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That is good news and thank you for all your hard work throughout this pandemic! I guess you are partially immune already now then :-)
Let us know how it goes and whether the 2nd injection produced more of a reaction.


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: CoVid 19 Vaccine
WhiteCell #284570 12/19/20 03:49 AM
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So excited for you! Let us know how dose 2 goes.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284572 12/19/20 01:40 PM
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Happy for you Whitecell!!


I am NOT my illness
Re: CoVid 19 Vaccine
WhiteCell #284598 01/15/21 02:28 PM
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I received the first of two doses of the Moderna vaccine on Wednesday. The actual shot hurt less than the flu shot, but about six hours later I felt like I had been hit by a truck -- extreme fatigue, headache, muscle aches, and soreness at the injection site. These symptoms persisted for about 24 hours and then lessened considerably. I share this not to dissuade you all from getting the shot (everyone should) but just to warn you not to schedule anything important in the day or so following the shot in case you experience symptoms like mine. A colleague of mine who got the shot at the same time as me only experienced an injection site reaction. So it's going to vary from person to person. Good luck!

Re: CoVid 19 Vaccine
Winston #284604 01/19/21 11:15 PM
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Originally Posted by Winston
I received the first of two doses of the Moderna vaccine on Wednesday. The actual shot hurt less than the flu shot, but about six hours later I felt like I had been hit by a truck -- extreme fatigue, headache, muscle aches, and soreness at the injection site. These symptoms persisted for about 24 hours and then lessened considerably. I share this not to dissuade you all from getting the shot (everyone should) but just to warn you not to schedule anything important in the day or so following the shot in case you experience symptoms like mine. A colleague of mine who got the shot at the same time as me only experienced an injection site reaction. So it's going to vary from person to person. Good luck!


Anecdotally I’ve heard that if you’ve been infected with COVID (even asymptomatic) you are more likely to react to the FIRST dose and if you’ve never been you are more likely to react to the second.

Do you know if you were previously exposed?


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284606 01/19/21 11:49 PM
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Interesting. I haven't heard or read that. I was exposed once that I know of, but I tested negative twice (on molecular tests) at three and six days following that exposure.

Re: CoVid 19 Vaccine
Winston #284608 01/20/21 12:21 AM
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Originally Posted by Winston
Interesting. I haven't heard or read that. I was exposed once that I know of, but I tested negative twice (on molecular tests) at three and six days following that exposure.

I know a few people with family members in medical fields and some of them seemed to get that impression. Again though it’s just anecdotes at this point.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284617 01/22/21 07:31 PM
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Just read this article, https://www.theatlantic.com/health/archive/2020/12/what-expect-when-you-get-covid-19-vaccine/617428/, which states that the Moderna vaccine has proven to be more reactogenic than the Pfizer one. So perhaps that at least partially explains my reaction.

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Re: CoVid 19 Vaccine
WhiteCell #284619 01/23/21 12:48 AM
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I typically get a little fatigue, chills, body and sometimes headaches from flu shots so I’m prepared for reactions.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284621 01/25/21 10:48 PM
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I had my first Moderna vaccine yesterday.

The vaccine itself did not hurt at all. No burning.

3 hours after the shot I had a significantly sore arm. Somewhat worse than the tetanus shot. I would suggest if you are a side sleeper to get it on the opposite side than you sleep on.

Just about 24 hours after the shot (this afternoon) my AS flared. For background, I have fairly severe AS. SI joints fully fused since my late 20’s and pretty painful/ movement restricting arthritis in my jaw, neck, shoulders, back, knees, and at the points of attachment of all my ribs.

It is nearly completely controlled with Humira, I do not have break through flares unless I have to put off my meds for more than about 4 or 5 days.

So I am confident this is a vaccine side effect. Joint pain is apparently a common side effect from the Moderna vaccine.

I’ve had flu shots, two types of pneumonia shots, and the tetanus that includes whooping cough and the most I get is a little chills/ muscle aches/ migraine from the flu.

So this is vaccine-specific.

It’s not that bad. I think a few Advil would resolve it but I do my best to avoid anti-inflammatories after a vaccine.

I strongly suspect it will resolve within a few days.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284626 01/27/21 12:24 AM
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My joint pain was mostly gone by Tuesday morning. The arm is a lot better too (moving it a lot helps).

So 12-16 hours of widespread joint pain and a day and a half of a significantly sore arm.

I’m a bit apprehensive about dose 2 now since that one is worse for most people.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284633 01/28/21 04:52 AM
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Someone I know told me that his psoriasis, which had been under control, flared up within a day after getting his first COVID vaccine. It started to ease within a couple days. So it seems it may temporarily exacerbate certain immune-related illnesses in some people.

I will be interested in hearing more reports as more people are vaccinated.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284634 01/28/21 03:30 PM
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I saw my rheumatologist this morning for the first time since getting the vaccine. He warned me that my reaction to the second shot will likely be worse -- perhaps even bad enough to require taking a day off work. He also advised me to time the second shot, if possible, at the end of my Enbrel cycle. Then, he said, wait 2 or 3 days after the shot to do my next Enbrel injection.

Re: CoVid 19 Vaccine
WhiteCell #284635 02/02/21 04:46 AM
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I'll let you all go first.

Re: CoVid 19 Vaccine
WhiteCell #284636 02/03/21 03:46 PM
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I was given doses 1 and 2 of the Pfizer vaccine December/January. Sore arm both times.

I have talked with people who had shakes chills and body aches. Most of us just had a sore arm

Last edited by WhiteCell; 02/03/21 03:46 PM.

Diagnosed 2001 after years of joint pain. Remicade started 2002 - 5mg/kg every 7 weeks.
Right Eye Iritis.Trabeculectomy/lens replacement 2006 > DSEK Cornea Transplant 2009.
>Ahmed Shunt 2016 >DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. Radio Frequency Ablation 2008.
Angina and stent placement 9/2020

ICU RN - Seattle, WA
~Grasp The Challenge and Succeed~
Re: CoVid 19 Vaccine
WhiteCell #284639 02/03/21 09:33 PM
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I had my first dose 18 days ago.

Only slight discomfort at injection site the next day.

No exacerbation of AS, UC, PsO, Uveitis.

I had a headache for several days the week after the first dose. I think that was unrelated and probably caused by usual culprits of change in weather, dehydration, too much screen time at night. I do get migraines from time to time.

Thank you everyone for sharing your Vaccination experience!


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: CoVid 19 Vaccine
WhiteCell #284640 02/03/21 09:34 PM
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Everyone with spondylitis: please fill out this SAA global survey on COVID-19 & Spondylitis. Its how we get answers :-)

Thank you, Rich

https://spondylitis.org/research-new/covid-19-and-spondyloarthritis-survey/


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
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Re: CoVid 19 Vaccine
WhiteCell #284641 02/03/21 09:38 PM
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Please consider joining our education/support group zoom meeting. Would love to hear about experiences first hand on the vaccine and spondylitis. it's on Singles Appreciation Day (Feb 14th).

https://spondylitis.org/resources-support/support-resources/support-groups/los-angeles/


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: CoVid 19 Vaccine
WhiteCell #284659 02/15/21 07:58 PM
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I had my second dose of the Moderna vaccine last Wednesday, and it was indeed worse than the first dose. I had chills, severe headache, fatigue, and muscle aches. The chills started about 8 hours after my shot, and the headache woke me up at 3 a.m., which was about 18 hours after my shot. It felt very much like the flu and was bad enough that I had to take the next day off work. The side effects were totally gone about 36 hours after the shot.

Re: CoVid 19 Vaccine
WhiteCell #284661 02/19/21 01:07 AM
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Your experience is consistent with other reports for Moderna. Several of my colleagues described the exact same response as does Winston.


Diagnosed 2001 after years of joint pain. Remicade started 2002 - 5mg/kg every 7 weeks.
Right Eye Iritis.Trabeculectomy/lens replacement 2006 > DSEK Cornea Transplant 2009.
>Ahmed Shunt 2016 >DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. Radio Frequency Ablation 2008.
Angina and stent placement 9/2020

ICU RN - Seattle, WA
~Grasp The Challenge and Succeed~
Re: CoVid 19 Vaccine
WhiteCell #284663 02/22/21 09:29 PM
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I’ve heard similar stories about the Pfizer vaccine. I’ll be getting my shot(s) in July at the earliest. Vaccine rollout is very slow here due to supply. And it probably will be the AstraZeneca one. It’s a vector vaccine so side effects might be a little different. And since I already had covid probably, I might not notice anything. Can’t wait to get it though!


Medication: Arcoxia 60mg as needed
No official dx yet (no visible fusion of SI joints on x-rays)
Re: CoVid 19 Vaccine
WhiteCell #284664 02/23/21 11:04 PM
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My second dose has been pushed back a week, and that interferes with the timing of my carefully scheduled Humira injections.

If I take Humira on schedule now it would be two days before the vaccine, which I’m not comfortable with.

So I’ll probably put off my Humira for 5-7 days. I’m not looking forward to that but I’ve been stable for years and tbh I’ve tweaked scheduling before to work around vacations and colds and the like. Just not used to it after a year of staying home.


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284670 03/05/21 12:42 AM
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I had my second Moderna shot on Sunday afternoon. Mild pain at the injection site that night (not as bad as the first one). I also felt a bit “off”.

Monday I woke up with a low grade fever and some very minor chills. A fairly bad headache. Just a little achy. Very significant exhaustion. Not like with the flu where you just want to sleep. It felt more like I’d walked a long way through deep snow. My legs and arms felt heavy and I was just worn out.

My temperature ran between 99.5 and 100.8 which was about 1.5-2 degrees above normal for me.

I really thought I’d wake up Tuesday feeling better but I still had the temperature, headache, chills and fatigue. My temp started to drop right before lunch. I took a nap in the early afternoon and woke up feeling better but still tired.

Woke up Wednesday morning back to normal. I did delay my Humira (my own choice, there is no official recommendation to do this) so I’m starting to feel the effects of that.

I missed two days of work but I was able to watch TV, shower, get myself something to eat and stuff like that. Emptying the dishwasher was tiring though.

This shot did not trigger joint pain for me like the first dose did.

Overall not bad at all.

Last edited by Mary Beth; 03/05/21 12:43 AM.

46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
WhiteCell #284675 03/07/21 02:07 AM
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Winston, I can relate. Thanks for sharing.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: CoVid 19 Vaccine
WhiteCell #284676 03/07/21 02:10 AM
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I had my 2nd dose of moderna three weeks ago.

It kicked my butt! But felt back to normal after 3days.

Shivering/shaking
Night sweats
Body ache (AS type of flare)
Uveitis flare
Headache

Mantra... trust that my body knew how to not stay in a flare & the immune system is doing its job to protect me from C19.

Last edited by RAHMBA; 03/07/21 02:31 AM.

AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
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Re: CoVid 19 Vaccine
WhiteCell #284677 03/07/21 02:36 AM
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My working theory...

people over 70 expect minor or no reaction.

People in 40s & 50s are feeling a pretty robust reaction, but only for 2-3 days.


AS, U C, Iritis, migraines. HLA-B27neg. Yoga (instructor) & spin. No meds at this time. Dx 1989. SAA member/donor since 1993. All my posts are personal opinion/feelings and do not represent the SAA. Help find a cure & support others by donating to the SAA.
Re: CoVid 19 Vaccine
RAHMBA #284678 03/09/21 01:51 PM
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Originally Posted by RAHMBA
My working theory...

people over 70 expect minor or no reaction.

People in 40s & 50s are feeling a pretty robust reaction, but only for 2-3 days.

Having talked to quite a few people now who have had the shot, I agree with this assessment


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
Mary Beth #284679 03/09/21 02:11 PM
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Originally Posted by Mary Beth
Originally Posted by RAHMBA
My working theory...

people over 70 expect minor or no reaction.

People in 40s & 50s are feeling a pretty robust reaction, but only for 2-3 days.

Having talked to quite a few people now who have had the shot, I agree with this assessment

This has been my observation as well. Most elderly people in my orbit have had little to no reaction to the shots.

For those who might be fearful of the vaccine side effects, I've read that the Johnson & Johnson shot is much less reactogenic than the Pfizer and Moderna shots.

1 member likes this: Mary Beth
Re: CoVid 19 Vaccine
WhiteCell #284700 03/24/21 02:53 AM
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I am getting either Moderna of Pfizer because the variants are coming and only the mRNA technology is nimble enough to crank out booster shots to protect us fast enough. The old chicken egg virus approach used for decades of influenza vaccine would never catch up with this evil COVID-19 virus.


Dx w/ AS in 1985. HLA-B27+. Left total hip replacement in 1998, lost 2" of height due to osteoporosis. Relevant meds include Remicade, Oxycontin, Percocet, Lyrica, Soma.7 hour spine fusion surgery for cervical spondylotic myelopathy and radiculopathy but have residual myelopathy. I have generalized osteoarthritis and have worn out hips, knees, big toes, and some fingers are fused or growing bones. Disabled since 2015. Chronic pain patient on a high dose of opioids. Live in zero gravity chair.
Re: CoVid 19 Vaccine
Jeffn #284702 03/25/21 09:17 PM
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The original vaccine will be able to protect against variants.


Diagnosed 2001 after years of joint pain. Remicade started 2002 - 5mg/kg every 7 weeks.
Right Eye Iritis.Trabeculectomy/lens replacement 2006 > DSEK Cornea Transplant 2009.
>Ahmed Shunt 2016 >DSEK Cornea Transplant 2016.
Supra Ventricular Tachycardia. Radio Frequency Ablation 2008.
Angina and stent placement 9/2020

ICU RN - Seattle, WA
~Grasp The Challenge and Succeed~
Re: CoVid 19 Vaccine
WhiteCell #284703 03/27/21 02:09 AM
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I was able to get vaccinated this past week due to use of “other immune weakening medication.” (CDC mid tier, may be at higher risk for severe COVID-19)

It was Pfizer-BionTech, first dose. A little sore in my arm 12-36 hrs after the shot. Tired/fatigued still a couple of days after the shot. Anyone else experienced tiredness?

My rheumatologist advised me to not delay my biweekly Humira injection which is due today. So I will take it while my body hopefully continues to building immunity... here’s hoping.


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: CoVid 19 Vaccine
WhiteCell #284705 03/27/21 02:32 AM
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I got my first Pfizer dose today around noon. I’ve never had any allergies to medications or reactions to vaccines before (& I volunteered in Africa so I’ve had all recommended US vaccines plus yellow fever, hepatitis A, hepatitis B, typhoid, cholera, & meningitis). I broke out in a full body red rash, tingling tongue, itchy throat, rapid pulse, and light headedness less than 5 minutes after getting the shot. They gave me high dose antihistamine and filled out a CDC reaction report while I waited for 30min to see if the rash and other symptoms would subside. The nurse told me that this reaction happens a lot more frequently in women. The rash went away 45min after the shot but I still have a tingly/itchy throat and just feel kinda weird 9hrs later. About an hour ago I noticed my arm was really sore, similar to tetanus but more intense, and a really bad headache. I’m apprehensive about the second dose to see if my reaction is worse, but I have no regrets. I do recommend anyone concerned about a reaction bring someone with to drive them home! The antihistamines knocked me out


Ankylosing Spondylitis and Lupus.
12 surgeries and counting

Dog mom of 3 rescues laugh

Re: CoVid 19 Vaccine
WhiteCell #284710 04/01/21 02:13 PM
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TNF-alpha (infliximab) impact on antibody response after vaccinations:

https://www.medrxiv.org/content/10.1101/2021.03.25.21254335v2.full


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: CoVid 19 Vaccine
PsSpa_M_1989 #284711 04/01/21 10:39 PM
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Originally Posted by PsSpa_M_1989
TNF-alpha (infliximab) impact on antibody response after vaccinations:

https://www.medrxiv.org/content/10.1101/2021.03.25.21254335v2.full

Thank you. Very informative


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
Re: CoVid 19 Vaccine
Brody96 #284732 04/24/21 11:46 PM
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What all have you had surgery on? I've had so many as well. I have AS, Fibro and Lupus.

Re: CoVid 19 Vaccine
WhiteCell #284746 05/09/21 03:53 AM
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Update from me. I had my 2nd Pfizer dose about 2.5 weeks ago. Tired within 12 hrs and then neck joint pain the following 2 days until my Humira injection. I was afraid the vaccine and Humiraantibodies were fighting each other and that the vaccine wouldn’t even work due to few or no symptoms related to the vaccine.

So I got tested for IGG antibodies against SARS-Cov-2 last weekend and that fortunately came back positive. My immune system has reacted.

So even though you doubt the vaccine even worked, it could still do its job. Just posting this for anyone else that may worry about the same thing.


Background: 32 yr old male
Symptoms: Ps (scalp, elbows, knees) since 2000; PsSpa (neck, sacroiliac joint) since 2015
Dx: Osteoarthritis Aug, 2017; PsSpa Nov, 2018
Treatment: Meloxicam, Nov 2018-Jan 2019; Naproxen, Jan 2019-Jun 2019; Humira, Jun 2019-Present
Re: CoVid 19 Vaccine
WhiteCell #284769 05/29/21 09:02 PM
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I had an interesting reaction to the second Pfiizer dose.

I felt pretty normal for about 48 hours. Maybe a bit of joint pain (but could also just be my normal AS symptoms). Then, out of the blue, the spot where I got the injection started hurting really bad. Then I started feeling cold. Soon, this feeling of cold turned into shivering. Gradually the shivering turned into full blown shaking. Muscles throughout my body were just shaking out of control. I thought I was having some sort of neurological problem. It was terrifying.

I called the nurse hotline and they told me to take Tylenol. I felt like I was on the verge of vomiting due to the stress of shaking so hard. My jaw muscles were killing me as they were so tight from the shaking. I was trying to open the bottle while on the phone and the nurse could hear the pills rattling around in the bottle due to my hand shaking so hard.

I cranked up the heat and crawled into bed with several blankets on me, and just endured this tortured chills, shaking and muscle contractions. After an hour it began to subside a bit and my stomach felt a bit better. I took the tylenol and got back into bed. About 25 minutes later, I lept out of bed as I was about to puke...thankfully made it to the bathroom in time and vomited about 6-7 times.

I called the nurse back and they said not to take more tylenol. I then started feeling very warm, and a thermometer showed 100.6. I laid with ice packs on my neck and forehead for the next couple of hours until I fell asleep.

Then at 5am, I woke up to the heat on full-blast in my bedroom, drenched in sweat, with my pillow, sheets, and duvet soaking wet as well. Changed everything and fell back asleep, and in the morning, I felt back to normal... now today, there is some redness and swelling and pain around the injection site.

This whole incident, particularly the violent uncontrollable shaking and chills was utterly horrible. Its definitely going to make me wary about getting a booster for this.

Re: CoVid 19 Vaccine
Cake #284938 02/03/22 01:07 PM
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Hi Cake, i am new to the forms and was looking at what others in the A.s community are doing for the vaccine, and your ... "the violent uncontrollable shaking and chills was utterly horrible."... Struck a cord with me!...back about 4 years ago, pre covd days went thru this exact same thing!! I was on Humira at the time,and it made my Anxiety insane...I wonder if your on Humira if it could be related to the Humira and not the Vaccine? i was never able to confirm if it was humira, it happen one time (thank god) and its the only thing i could think that caused that incident.


diagnosed in 2016, almost complete fusion,,i walk like a human "?" question mark,..lol new to the forums on 2/3/2022.
Re: CoVid 19 Vaccine
WhiteCell #284939 02/03/22 10:47 PM
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Has anyone had a low White Blood Count after covid or after the vaccines?
At the end of December my WBC was 5.5, then the first week of January I got the vaccines and covid, think covid was first but not sure, the symptoms were low fever for a few days, headaches, general discomfort and unbearable pain in the throat, I am about to start with Enbrel and now (February 2) my WBC is 3.7 (minimum for the lab is 3.8) not sure yet if the doctor will start or stop the Enbrel, I would like to start as soon as possible but also have some concerns about the low WBC.
Any experiences with covid and White Blood Count?


41 yo, main problem stiffness and pain in the neck since 33 and always be treated as osteoarthritis till reach 41 years old
Hla-b27 negative, CRP y ESR always normal till 41 yo and 6 months when spike, sulfasalazina and indomethacin from July 2021 till December 2022, enbrel from February 2022, nsd and autoinmune paleo diet from January 2022
Re: CoVid 19 Vaccine
WhiteCell #285034 07/14/22 10:53 AM
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I personally am not taking the vaccine. There are too many hidden documents coming to light about the problems Pizer knew about they hid from the public. Hackers just got ahold of documents confirming a majority of pregnant women lost their pregnancy due to the mRNA component but yet they were telling pregnant women it is safe. Furthermore, who knows how mRNA is going to react with AS long term. The truth is no one knows.


My entire family did not get vaccinated and we have yet to catch COVID once - any of us. But yet all the vaccinated people I know have had it multiple times. Maybe I am being paranoid or just don't trust pharma and the government, but I am not taking it.

If the government really cared about the most people getting the vaccine to prevent the disease, they would have approved the Novavax Protein Based Covid vaccine in January 2022. But they didn't. The application was just approved for emergency use now. It took 7 months to approve it. They delayed it as long as they could to prevent Moderna and Pizer from losing money. If I had to take a vaccine, I would probably take the Novavax since it doesn't use the mRNA technology which seems to be the cause of all the side effects and issues.

This isn't about helping people. It's about making money.

Re: CoVid 19 Vaccine
mpc2012 #285035 07/14/22 02:34 PM
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Originally Posted by mpc2012
I personally am not taking the vaccine. There are too many hidden documents coming to light about the problems Pizer knew about they hid from the public. Hackers just got ahold of documents confirming a majority of pregnant women lost their pregnancy due to the mRNA component but yet they were telling pregnant women it is safe. Furthermore, who knows how mRNA is going to react with AS long term. The truth is no one knows.

The part about pregnancy is just not true.

https://www.sciencedirect.com/science/article/pii/S1471491422001083


46, diagnosed with AS in early 2005 and on TNF-blockers since then: They have been miracle drugs for me. On Enbrel from spring 2005 to Nov 2008. On Humira from Nov 2008 to present. Baclofen and OTC anti-inflammatories as needed.

"You must be the change you wish to see in the world." --Gandhi
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