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Re: Patient-To-Patient Recommended Rheumatologist Directory
#264478 02/25/14 01:55 AM
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Dr Julie Kovacs
Toronto, Ontario, Canada


Male, mid 50s, Dx Reactive Arthritis 1981. AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Some bowel issues, anemia. Inflammation of the joints in hands and feet.
Re: Patient-To-Patient Recommended Rheumatologist Directory
#266156 05/02/14 09:49 PM
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Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)


Elin Aslanyan

Director of Programs
Editor-in-Chief, Spondylitis Plus
Forum Moderator

Spondylitis Association of America
Re: Patient-To-Patient Recommended Rheumatologist Directory
#269933 01/12/15 12:29 PM
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Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????

Re: Patient-To-Patient Recommended Rheumatologist Directory
#270724 03/22/15 02:11 AM
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Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!


Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO
Re: Patient-To-Patient Recommended Rheumatologist Directory
#273851 04/02/16 08:27 PM
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Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?


Yet waiting and pressing in for diagnosis.

Thanks for listening and for your caring support.

Laughter is the best medicine after all.
Re: Patient-To-Patient Recommended Rheumatologist Directory
Anonymous #279635 12/22/17 08:50 PM
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After seeing 4 different rheumatologists and over the coarse of 9 years... Dr. Mei An Tonette Ty Arias finally gave me a diagnosis (AS) after years of not knowing what was wrong. She's one of the first who've really listened to me and did the necessary digging to get me a proper diagnosis. She even ultrasounded my hands during the visit and discovered swelling. She's patient, honest, and does her best to balance my physical needs along with my quality of life. I couldn't ask for a better rheumatologist and office!

3030 North St
Ste 450
Beaumont, Texas 77702-1433
Phone: (409) 832-9600

Re: Patient-To-Patient Recommended Rheumatologist Directory
Anonymous #285104 07/10/23 01:06 AM
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My current and only Rheumatologist I have seen is Dr. Neelakshi Patel in Stanford Campbell California
https://stanfordhealthcare.org/doctors/p/neelakshi-patel.html

She has been very helpful and discusses all medicines and their cons with me. And supportive of me wanting to switch medicines. I have changed Humira to Cosentyx, back to Humira and now on Inflectra. Not sure if it matters, but reading some other posts seem like, not all Rheumatologists are open to trying different biologics.
She was also supportive of me undergoing spinal reconstruction to correct the kyphosis.
In case anyone needs, I also saw Dr. Sigurd Berven from UCSF for my kyphosis and spinal surgery. He gave me another life, with the surgery.


Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16
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