Spondylitis Association of America Forums General Discussion General Message Board for Ankylosing Spondylitis and Related Diseases Spondylitis Symptoms - List Your Symptoms

Early years,
1. low back pain, mild
2. pain in neck, knees moderate pain
3. mild fatigue most of the time
4. shoulder pain and ribs mild to moderate pain
Last 5 years. Overdrive
1. Fatigue like the flu most of the time
some brief periods of improvement
2. CHRONIC PAIN Moderate to Severe
Neuropathic Pain- shooting Electrical PAIN
3.LOSS of some range of motion in neck
When this hurts you cannot concentrate
4.Shouders and thoracic /currently almost no pain
5.Elbows, Hands ,Wrists, sharp pains,
swelling in fingers and sometimes numbness.
6.SI AND LUMBAR BACK PAIN MORE/MODERATE PLUS
7.Knees now have moderat pain/enthesitis
8.FOOT PAIN. MODERATE
9.GROIN PAIN SHARP PAINS
10 HIPS MODERATE PAIN
11. TMJ my jaws have been hurting moderate plus
12. Finger Joints just started having first
time pain this year, calcifications
13. Ribs are sore to touch
14.EYES dry scratching feeling
15.starting to have mild balance problems
16. developed Lung problems, last two years
Sleep Apnea, Asthma
17.insomnia
18.heart valve involvement
19.anxiety and depression that I mostly control with Lexapro
20.Nails have ridges, skin inflammation behind both ear lobes.
21.IBS
I,m tired of writting thats enough

1. pain in shoulder blades
2. pain in elbows
3. plantar fasciitis
4. pain in the sacro-iliac joints
5. upper back pain
6. diagnosed with arthritis in right little finger prior to AS diagnosis
7. neck pain
8. TMJ

(cont)
9. arthritis in knees
10. hip pain
11. numbness when sleeping on arms
12. arthritis in the tarsometarsals
13. bursitis (left elbow and suspected hips)
14. ankle enthesopathy

-severe iritis
-cramping in legs
-swelling in knees and ankles
-hip and si pain
-lower back pain
-tmj
-stiffness and pain in hands and wrists
-stiffness upon waking up
-fatigue
-always hot 24/7
-ibs
-rib pain when sleeping
-do not sleep all night
-severe achilles pain and sometimes burning on ball of foot

I guess it's time to list me symptoms:

1. stiffness midback and between shoulder blades
2. pain lower back and on tailbone sometimes
3. left-shoulder pain
4. hand and wrist pain
5. right-knee pain
6. right-ankle pain
7. plantar fasciitis left foot
8. migraine headaches of worsening severity
9. neck----snaps and crackles
10. bone pain (that's a new and recent symptom)

The heck of all this is the pain tends to move around and not even be consistent from one day to the next. The back aches and pains are pretty constant.

Elaine

That is one reason why we are so hard to diagnose. I have had most of your symptoms, except for the bone pain.

Jerry has AS, fibro, torn discs and undiagnosed crohns.

low back pain
thoracic pain (used to crack and get relief, much harder to crack now, and very stiff)
plantar fasciitis
shin splints
feet swell terribly
buttock pain
cannot sit for more than 10 minutes
cannot stand or walk for any length of time
feeling of broken glass in his stomach
feeling of 'battery acid' in his intestines
constipation/diarrhea alternating within hours of each other (explain that one??)
very tight muscles in his calves and close to his spine (muscle spasms?)
neck pain
swelling of hands and difficulty moving his fingers, esp in the morning
can barely move in the morning because of stiffness
occasional blurred vision and eye pain (never has had iritis)
achilles tendonitis
difficulty sleeping
almost total fusion in both SI joints
stenosis in S1 through L5

I mentioned the above conditions he has, because it's hard to tell which symptoms belong to which condition.

Sarah

Here are my symptoms:

CONSTANT

- lower back pain
- diminished range of motion in right shoulder
- fatigue
- flu-like symptoms several times a week (especially if I am in the office or on my feet most of the day)
- jaw pain
- swollen gums
- swollen knuckles in my hands (worse in the morning)
- burning behind my knees
- insomnia
- diminished breathing due to swelling in breast bones
- colitis

INTERMITTENT

- knees and hips lock-up (caused quite a few falls on my stairs)
- swollen glands
- gout
- hair loss
- upper back pain
- ankle pain
- frequent infections
- difficulty staying hydrated

25 yr old - female - Hla b27 negative
AS dx 5/2007- began Enbrel same day

current symptoms on Enbrel-occaisional motrin
s fusion
hip fusion
gait changes
cervical neck stifnees/decreased ROM-right,left,up,down
Fatigue
interrupted night sleep
spine pains mild/crackling
easily becomes cold
observed crabbiness

pre Enbrel
Unremitting pain 1 1/2 years til dx and enbrel
for 7 years flares 1-2 weeks at a time every 1-2 months
bi lateral sciatica - culminating in leg weakness, tendon tightening (was unable to fully straigten right leg at ankle, knee, and hip for 3 or more month while walking prior to enbrel)
Chest tightness to,
shortness of breath to,
chest pains
3 bouts iritis
fatigue
always hot
stiffness
pain with sitting
unable to be on feet over time sometimes 10 min was too long
hip pain
sleeping on side most comfortable
interrupted sleep
morning, afternoon and evening pain and stiffnes
mild frequent/almost daily headaches
poor gait during flares
during flares afraid to be bumped or jostled, even someone sitting on the couch next to her elicited "be careful"

lifelong ?
sweaty palms, feet
mild but very frequent headaches
allergies to cats
earaches and strep throat problems-age 5 removal and tubes- tubes needed again at 12

I think that's it.

in the beginning:

back pain (mid & lower) about 2 months in duration every couple years

scoliosis

neck & shoulder pain came on for about 4 months, had to do physical therapy and cortisone shots
(could not use arm without significant pain)
iritis

now:

pain in neck with nodes??
shoulder pain & stiffness
mid and lower back pain & stiffness
butt pain radiating to thigh
hip pain & stiffness
ankle, heel and bottom of foot pain and stiffness
wrist pain with nodule and swelling
Knee pain ( on the top of knee) burning pain
all of the above made worse after inactivity
sometimes hurts just to lean back against couch or pillows
hurts to sit
fatigue
occasional rib soreness, especially after sleeping
insomnia