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 Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Sep 2007
Posts: 309
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Registered Visitor
Joined: Sep 2007
Posts: 309 |
Dr Julie Kovacs
Toronto, Ontario, Canada
Male, mid 50s, Dx Reactive Arthritis 1981. AS+ 1991, HLA B27+, Tylenol 3 PRN for flares. Considering a biologic. SI and thoracic involvement and costochondritis. Many bouts of uveitis. Some bowel issues, anemia. Inflammation of the joints in hands and feet.
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: May 2008
Posts: 93
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Registered Visitor
Joined: May 2008
Posts: 93 |
Thank you very much for these! I'll be updating the directory soon and will include your recommendations (we do check first to see if they are board certified)
Elin Aslanyan
Director of Programs
Editor-in-Chief, Spondylitis Plus
Forum Moderator
Spondylitis Association of America
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Nov 2014
Posts: 10
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Registered Visitor
Joined: Nov 2014
Posts: 10 |
Any suggestions on a great rheumy, that REALLY CARES , in the New Orleans, La. Area????
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Mar 2015
Posts: 3
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Registered Visitor
Joined: Mar 2015
Posts: 3 |
Dr. Jonathon Kushi at Rheumatic Disease Center in Milwaukee WI. AMAZING!!
Diagnosed with Ulcerative Colitis (age 4), total Colectomy 1991
Diagnosed with AS 2003 (age 19)
Past Tx: Humira (2004) and Enbrel (2004), developed cellulitis from both. Remicade (2004-2014), developed drug induced lupus. Sulfasalazine (2014-2015), not controlled and developed bruising and pruritis at higher doses.
Current Tx: massage, pain meds PRN, cortisone injections into SI joints PRN
Other: hx of multiple pleural effusions, chronic pleurisy, hx of DVT right arm, chronic migraines, PFO
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Mar 2016
Posts: 58
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Registered Visitor
Joined: Mar 2016
Posts: 58 |
Anyone know of a good rheumatalogist in Nebraska or there abouts? One that knows about AS?
Yet waiting and pressing in for diagnosis.
Thanks for listening and for your caring support.
Laughter is the best medicine after all.
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Dec 2017
Posts: 2
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Registered Visitor
Joined: Dec 2017
Posts: 2 |
After seeing 4 different rheumatologists and over the coarse of 9 years... Dr. Mei An Tonette Ty Arias finally gave me a diagnosis (AS) after years of not knowing what was wrong. She's one of the first who've really listened to me and did the necessary digging to get me a proper diagnosis. She even ultrasounded my hands during the visit and discovered swelling. She's patient, honest, and does her best to balance my physical needs along with my quality of life. I couldn't ask for a better rheumatologist and office!
3030 North St
Ste 450
Beaumont, Texas 77702-1433
Phone: (409) 832-9600
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Re: Patient-To-Patient Recommended Rheumatologist Directory
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Joined: Oct 2015
Posts: 415
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Joined: Oct 2015
Posts: 415 |
My current and only Rheumatologist I have seen is Dr. Neelakshi Patel in Stanford Campbell California https://stanfordhealthcare.org/doctors/p/neelakshi-patel.htmlShe has been very helpful and discusses all medicines and their cons with me. And supportive of me wanting to switch medicines. I have changed Humira to Cosentyx, back to Humira and now on Inflectra. Not sure if it matters, but reading some other posts seem like, not all Rheumatologists are open to trying different biologics. She was also supportive of me undergoing spinal reconstruction to correct the kyphosis. In case anyone needs, I also saw Dr. Sigurd Berven from UCSF for my kyphosis and spinal surgery. He gave me another life, with the surgery.
Male, early 30s. AS diagnosed Sep 2015. HLAB27+
Current medicines: Omeprazole, Vit D3, Celecoxib(1 tab)/Zorvolex(2 tabs)(alternatimg between these two every week), Pyridoxine, Isoniazid, MTX(3 tab) every wednesday, on humira every two weeks since Dec 2015, Weekly Humira since June 18th 2016
On cosentyx 300mg a month since Dec '16
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