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Re: Why aren't there more men here?
#91448 11/23/07 01:44 AM
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Mark D Offline OP
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Well, thank God for the women making this board active. And a hearty invitation for you male lurkers out there to come out of the shadows every now and then.

I think people who are doing OK with their disease and busy with life will not have too much time to spend here. That is great. They will miss out on some helpful discussions, but can always go back and read the archives when they get interested. One cool thing is that the record of people's experiences is being added to all the time, so the information is growing. But there is still a lot to be said about interacting with others -- even making friends -- through this forum. For the first 23 years I had AS I only knew one other person with the disease. I felt alone in it, but since it was not a major issue in my life, that seemed OK.

I myself did not even start reading this site until my doctor told me about Enbrel and that people with AS were using it in trials -- that was shortly before it was approved -- so I wanted to do some research and see what people were saying. I might have had a few questions back then, but did not get active until this past year when my condition got so bad that I was compelled to get more answers. As I got involved I discovered a community (with more women than I expected, but still diverse).

Sometimes when I don't feel well all I want to do is just lie in bed and use my laptop and wireless to stay amused. I spend time at other blogs, but try to check out this site every day, at least the General boards. Technology has brought us together and it has also now become part of my therapy. Nope -- that sounds too unmanly. Instead let's say it has become part of my LIFE.


DXed with AS almost 40 years ago
Re: Why aren't there more men here?
#91449 11/24/07 04:12 PM
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Well-said Mark,

But personally, I think it's because Women are from Venus and Men are from Mars.

Dean


Keep the Faith!
Re: Why aren't there more men here?
#91450 11/25/07 05:18 AM
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I think a lot of us guys are just set in our ways. Not just in general, but with dealing with A.S. as well.

In speaking for myself, I've had A.S. for 25 out of 35 years of my life. And Enbrel works great for me.

So I really don't have much to post about.


Unless we start talkin' about women. Then I've got some things to say. wink

Storm

Re: Why aren't there more men here?
#91451 11/25/07 08:05 PM
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Well being new to the board, I wondered also why they were not many posts here? I think this is a great place to gather knowledge and so far that is what I am doing to the most part. I have question for the male group and will post it soon. I hope that we all can work together to help one another battle what ever has us down.
Ron

Re: Why aren't there more men here?
#91452 11/26/07 02:34 AM
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Storm, I agree with your point. Reviewing my "oral" medical history, my rheumy feels that I started presenting symptoms at age 14, 46 years ago. Other than some very frustrating "mysteries" such as no mater how carefully I trained (powerlifting and Judo) I kept getting these anoying back and joint injuries.

This went on until three years ago when the pain became so bad that I was hating to go to the gym and my PCP refered me to my current rheumy. Now, on HUMIRA and metatrexate (recently), the pain and inflamation is better thant it has been in years...so my feeling is "it is all good" and I don't ahve much else to say.
uncle mikey

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