I know the feeling! I was diagnosed when I was in my teens, college was really exhausting at times. Now I'm in my late twenties and still get really frustrated when I can't "do" what everyone else does- i.e. go out, stay up late, work out on a regular basis.
if the humira has stopped, talk to your doc, there's a ton of good meds out there! I just started Remicade and on my 4th dose and feeling almost " normal". Don't give up!! This forum is awesome for help/advice and pick me ups.
"We are what we repeatedly do. Excellence therefore is not an act, but a habit."-Aristotle.
29 y/o, first diagnosis of AS at age 22. Also have OA in both knees, Raynaud's phenomenon, taking Remicade infusions and weekly methotrexate injections, as well as voltaren, protonix and folic acid.