Well, whining about your individual pain in one thing, and helpful to get support but dwelling on what is the worst of AS? Really, I can look at what I can't do or I can look at what I can do. Which is more helpful to me?

I totally understand, just pointing out the different ways we can look at what we are going to be stuck with the rest of our lives. Which, like Kelly I hope is a long time, even if I can't ice skate anymore.

Yes, living with constant pain sucks. SUCKS. I can tell you from experience that focusing on the pain and bad doesn't help. Sure we all do it, and can't fight the monster constantly, but we also don't need to dwell in hell every minute of my life either.

a


Actema IV once a month (with pre loading for allergic reaction), Cymbalta x1 daily, Arava 20mg daily. Diagnosed with AS in 2004, suffered undiagnosed since 1982.