My son is 16 and was diagnosed 6 years ago. I have been having trouble getting my son through school. It always seems to be a fight to get what he needs. Every year I go in to explain his disease, but because he "looks" normal I always get some flack. He is going every day for half days so that he can actually make it there every day. Now the school doesn't want to let him have a math specialist for the math class he misses. He is tired of all the let downs with school and I am looking for alternatives to help or if anyone knows what the schools in NY state are required to give him.


Son age 16 diagnosed 2003, other adult children have symptoms but don't want to be tested (fear of losing insurance)