I also have a daughter with AS. She is now 18 and was diagnosed in April of this year. We thankfully only went 4 months not knowing what she had. She is taking enbrel now and it is working. For the last 9 years she has played competitive volleyball and was lucky enough to get a scholarship. We thought it was all over and she would not play, it took about 2 months for it to even out but, she's playing, taking 15 hours in college. Her pain is still there but, nothing and I mean nothing like it was. There is a copay card that comes with the enbrel, it is great! We have insurance but, it doesn't pay all. The copay card takes care of the rest. I felt your pain thru your email and I hope this helps you both. My prayers are with you. Rhonda