Originally Posted By: JenInCincy

That is not factual. SAA has little info on this diet because

"To date, none of these claims have been substantiated by rigorously controlled studies." (source: http://www.spondylitis.org/about/diet.aspx)

The published papers are theoretical in nature. They do not report on actual studies of the diet - using a control group. From http://www.spondylitis.org/about/diet_lowstarch.aspx

"In 1996, in a paper supporting his theory, Dr. Ebringer published the chart of one of the patients that he had been following over a period of time. The patientís sedimentation rate (ESR) showed a clear decline from 1983 to 1995, during which time he had followed the special diet. It is important to note that although ESR is sometimes used as a measure of disease activity in patients with arthritis, it is recognized that ESR levels in AS are not necessarily indicative of how well a patient feels. Dr. Ebringer believes that the lowering of said patientís ESR level demonstrated the success of the diet.

"Other studies have failed to duplicate the results of Ebringerís research into how a low starch diet influenced the growth of klebsiella in the gut and have found that the diet has little or no effect on symptoms." [emphasis added]

Have to admit that the main way my doc tells if the TNF is working is by the CRP numbers. That is an inflammatory number just like ESR is. There is no question we use blood work on inflammation for some people to let us know how effective treatment is. However there are those who show no inflated ESR or CRP and definately are suffering from AS. Seems to be one of those it works for me to indicate disease activity but certainly not all. For me ESP and CRP are definately indicators of disease activity and how I feel.

I would also like to read those other studies to see if they were rigorous and double blind or just as non controlled as Ebringers was and thus no more reliable in saying the diet doesn't work. To me the Jury is still out

Last edited by drizzit; 02/12/12 07:58 AM.