Jen - I find your answer interesting. All I can say is that we are poles apart on this.

It is a shame to hear that you would submit a child to the possible treadmill of drug treatment - I don't know how representative the horrendous stories of drugs not working that I see and hear from others I know - do you know the stats?

I have a 13 year old and 10 year old - if they ever get any autoimmune disease then I am 99% sure i would put them on an elimination diet - before allowing a doctor to give any of the strong stuff. I've seen my Dad suffer too much on meds - and I've seen too many stories apart from my own that provide me sufficient evidence that a few weeks perhaps 4 of a trial would be much much safer than starting meds. For me meds would be the last resort not the first.

If there are no studies done on dietary approaches then shame on the medical profession for that - we can have this debate forever and you will use the same "no evidence" put down time and time again. The genie is the truth - the cover up is the lack of study in the face of 1000's of success stories.

I am slightly confused by your presence on most posts on diet - especially as you have not given it a good try yourself. It would be a bit like me going on to one of the other threads and telling someone considering Humira that I didn't really think it was any good - I won't do that because I have no experience. Are you diet curious - your persistence is muddying the waters for anyone that wants to give dietary approach a try?

There is a lot of debate in the world as to what a balanced diet is - Paleo is proving to be quite successful with many people feeling better than ever.

I admit that for me the Ebringer research is not cut and dried - and there are more factors in play, including food intolerance / allergy and other bacteria apart from klebsiella. So instead of saying Ebringers research has not been replicated - take a look at the success of elimination diets of different types on all sorts of auto immune diseases. You will see a pattern. There are more than just the AS success stories out there.

For me the research of Dr Fasano is interesting - but is also hugely disturbing, suggesting that up to 10% of the western world should take a pill to allow them to keep eating wheat - when there are other researchers proving that anti-gliadin antibodies are common in many non celiacs - especially those with auto immune diseases - why not just stop eating it! Links as requested -

When put with this - Juvenille Arthritis

I am sure those researchers were happy that gut permeability was present before the meds.

There does not seem to be any one group trying to link different research and studies they all have there own narrow aim!

Last edited by SeanP; 11/29/12 11:29 PM.

Strength to you all! Whatever you try...

About 75% better than the worst I have been... but still flare from time to time - I do NSD or LSD in emergencies but always restrict wheat, corn, rye and other grains. Have helped friends with my experiences - 20 years now!
Here is a link to my story -