I'm 57. I've had symptoms since my 20's, but was not diagnosed until age 52. I started Humira at age 53. I have no fusion. I have some damage in my lumbar spine, but not enough to significantly affect ROM. My spinal pain most days is a 1 unless I walk a lot (I limp on my left knee, which puts stress on my back) or stand a lot. It rarely goes higher than a 4-5. My knees were hit pretty hard so I've had a partial knee replacement in my right knee (in 2014) and will have a partial in my left knee in August.
There are tons of AS'ers like me out there.
Ginny - 58 year old female
Dx with USpA in March 2013; changed to AS in July 2015
Iritis and Scleritis, both currently in remission
unicompartmental knee replacements: right-June 2014, left-Aug 2018
MTX, Humira, Cyclobenzaprine, plus Celebrex as needed
Supplements: Folic Acid, Vitamin A, Vitamin D, Calcium, Fish Oil, Culturelle probiotic, Melatonin (as needed)