I'm 57. I've had symptoms since my 20's, but was not diagnosed until age 52. I started Humira at age 53. I have no fusion. I have some damage in my lumbar spine, but not enough to significantly affect ROM. My spinal pain most days is a 1 unless I walk a lot (I limp on my left knee, which puts stress on my back) or stand a lot. It rarely goes higher than a 4-5. My knees were hit pretty hard so I've had a partial knee replacement in my right knee (in 2014) and will have a partial in my left knee in August.
There are tons of AS'ers like me out there.
It’s great to read this. Not just for myself but for you.
If I may ask, were your symptoms intense during your 20’s? Mine were pretty bad as far as inflammation goes.