My son was diagnosed at 15. He sees a doc at Mayo Clinic and we go back on June 10. He's hurting, but doesn't want to let anyone know or make a "big deal" out of it. Right now, they're trying to diagnose me with fibromyalgia ... I'm HLAb27 positive (like Ryan) ... I don't think I have it, but they're looking at it. I think this is so hard for the kids to accept; we just have to be there for them, and it's great to have a place to share concerns. I just wish there were more of us posting in this area. Ryan has connected with a couple of teens through this and that helps; moms need connections too! Our thoughts and prayers go out to all of our friends dealing with AS ... it's a challenge.